Living with Multiple Sclerosis - Summer heat and Tysabri

I'm handling the summer heat very well while taking Tysabri!!

Category:

People & Blogs

Tags:

• Multiple
• Sclerosis
• MS
• Tysabri
• Summer
• Heat

[nsirgado]

hey laurenparrot,l i know what u mean, i live down here in miami, very hot, work nights, still humid, love music i work out with arm curls and do lots of pushups, but my legs then start to hop and down, well your videos help, havent started yet with tysabri yet, have appt on jan, im on fmla as of oct suffured 2nd relapse in 5 years, not bad but now im on work disability, and i would like my life back

[laurenvparrott]

I hope that your appointment goes well in January! Please let me know what happens! I hope the weather isn't too hot right now!

[oldfart442]

Hi Lauren,

thanks for the posting. I was diagnosed with MS in 1994. I have a lot of trouble with heat same as you , and everybody else does. Have you looked into vests with cooling packs in them? They are sold as heat protection devices, mainly for the construction trades. They have re freezable bags that then are put in a vest with pockets made for the bag. Not too pretty, but they will extend the temperature range you can tolerate. Good Luck!

FYI - You are still young! Mike-48 w/ MS

[laurenvparrott]

Hi Mike! Thank you for the suggestion! I will definitely look into a vest like that. I wish you the best!

[vincekelly1]

Hi Lauren,

Thanks for the videos and insights!

I was wondering about your walking/gait. How far can you walk at a stretch? a mile? more? how was it before Tysabri?

[laurenvparrott]

Thank you for writing! I can walk for about a mile and then I need to rest. My overall physical abilities improved after taking Tysabri, but I do still get tired easily.

[laurenvparrott]

Thank you so much for writing! Good luck with everything and please keep in touch!!

[medad1]

Hi Lauren from Mohammed, im a multiple sclerosis patient from Saudi Arabia since 1992,thank you for all valuble infromation about Tysabri.

bye

[laurenvparrott]

Hi Omar! Thank you so much for your comment! I know, I HATE the summer. I couldn't go to a wedding in Tennessee either because it was too hot and humid for me. I totally understand. I hope you are making the best of it - stay cool - it won't last for too much longer!!