22q
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1:38
cri du chat syndromby BWAFilmz4,661 views- 0:32
VCFS 22q11 Deletion Syndromeby mmkamper1012,060 views
- 5:57
Life With VCFS Part 1by jqcb8239,329 views
- 0:19
Sjogren's Syndromeby 3dnamedical20,322 views
- 7:41
22Q11.2 Awareness Videoby richfarrant1,197 views
- 12:41
22q at the Zoo Video 2011by aiddar12283 views
- 2:26
DiGeorge Syndromeby 1510Orlando1,033 views
- 9:55
TERALYNNby davidNtonya9,651 views
- 4 videosDiGeorge Syndrome
- 1:05
DNA replication animation by interact Medicalby slcolucci151,114 views
- 10:17
JOSHUA DRYDEN AT TODDLER GROUPby julietjie285 views
- 2:34
Danny kieran 22q11.2 deletionby wiltspest252 views
- 1:59
VCFS Workshop april 5 2008by Tah17011,223 views
- 4:09
22q11.2 Duplication: Video for my boysby stephiemoo121212628 views
- 4:56
090504 HMRI Linda Campbell VCFS & Schizophrenia webby HMRIAustralia1,181 views
- 1:47
Hala Starts Signing - 22q 11.2 Deletion - DiGeorge Syndromeby HalasHeart285 views
- 1:35
joshua 4 years old speaking - di george syndromeby julietjie2,149 views
- 9:27
Asah one AMAZING lil manby EminemFan09454 views
- 3:58
Chromosome Disorder Outreach (CDO) YouTube Videoby chromodisorder15,135 views
- 5:12
Federico e mariaby christiancarmosino2,200 views
- 0:31
Chef Rock :30by MarchofDimes1,312 views
we try our best, i have a page on my son jayden on facebook, all about jayden mark smith. im darren as you can tell, and im happy to answer any thing if i can.
to the ones who cop alot of slack out there, i give my shirt to u, its not a nice thing.. we already have life so hard.
keep the chins up ppl. and perhaps we can start a major youtube page. with everyones input, and also gifts... magicofmusic2010@hotmail.com
email me there if you wish.. its my main one
cheers ppl
darrenkontista 11 months ago
we all have some gifts, weather musical, something odd, usually is something odd.. but the main thing people, dont let society put u down, i hate the words down syndrome.. there has to be a better name for them, i give my hat off to who has the courage to talk about it. i have a youtube page, not much about vcfs as of yet..more musical.feel free to add me as a friend, im happy to get to know u guys and girls.. what people need to know and understand, its not easy living with this deletion
darrenkontista 11 months ago
i am 30 this year, ive had 22q for my entire life, my son has it also, and i wouldnt even be able to type his medical.. but its nothing in my eyes to be scared of guys and girls.. it needs to be more known,... i have a pointer for u all..i have had two open hearts myself, and its not fun... but any of u, dont give up ok, and keep your chin up high.. we may live with vcfs 22q 11 deletion.. we maybe effected in our own way, but think of what good gifts you have.
darrenkontista 11 months ago
I have 22q as well, great news piece I live in vermont I'm doing a 6hr spin class for special olympics, and awareness for 22q-11 deletion syndrome.
trc7880 2 years ago
My son has VCFS and every day brings something new with these kids. My son is now 19 and he does see the world differently than anyone I know. He is the light of my life and I wouldn't change a moment of it.
kracckers 2 years ago