ME/CFS: The Death of Sophia Mirza
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This is such a tragically sad story, and I know that Sophie was not alone in the cruelty she suffered at the hands of her doctors. My heart goes out to her family. What success did her mother have with her complaint against the GMC?
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I'm saddened that it takes such a tragic event to prove that this is real! While those people (inc. my landlord) who refuse to believe make offensive, hurtful comments, goodness knows how many of us even struggle to sit up for pain. The woman in the post is right, those who refuse to believe should be made to spend a month living with the restrictions we face daily, especially benefits people & politicians who "govern" the benefits system. Just the very fight to keep our money makes us more ill!
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Since I first watched this video three months ago, I discovered something called brain retraining or neuroplasticity. There are two of such programs that are successfully treating ME/CFS, search for Gupta Amygdala Retraining or DNRS. I have MCS, after 5 weeks of doing the dnrs program I am 60%+ better, all body pain symptoms and fatigue are gone. I know ME people on planetthrive (support community for EI) who are getting better. Damage to the brain can be repaired much like with stroke victims.
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There's a video you can order online called "sleepydust" It's a true life documentary about "C.F.S/M.E " it's wonderful!
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This video makes my heart saddened! It could happen to any of us who suffer from this debilitating illness,We just have to make the best of each & every day,For we don't know which one will be the last.
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@Artym1ss Yes it's really sad that a human would be treated that way.
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@theoriginalskinsey NO, I will check it out,Thank's
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@justthemom3 Thank you for your kindness,People can really be cruel & unloving.
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@nancypittman WOW! Your story sound's exactly like mine!
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@2876543ify -Ecclesiastes 9:5
Great report. I saw this a few years ago on the IIME site but it's such a shame that there doesn't appear to be any follow up about this in the media. Such a damning report and such a scandalous way to treat the most vulnerable in society and yet it's not even treated as newsworthy. Showing us celebs who had "a bit of M.E" for a few months which was resolved with LP or yoga and organic vegetables is an insult to Sophia's memory- the two situations clearly aren't the same.
neelubird 2 years ago 11
thanks for posting (was a bit suprised to see a tiny bit of footage of myself), I have to say I think merdian/stacey have done more to raise awareness than any other program/person.
Thanks for Criona for sharing her daughters story, as she said Sophia will of changed so many peoples lives
vikkkilouise 2 years ago 8