toddler tonic clonic seizure

tail end of tonic clonic seizure. He had three on this day (labor day 2010).

Drake has Dravet Syndrome (aka SMEI) - a rare genetic, intractible epilepsy that will never be outgrown.

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[ozark5150]

Bless his little heart. I undestand completely my son has multiple seizure types. He has this exact same tonic clonic seizure. His drs are testing him for Lennox Gastaut and Dravets. His is addorable. How is he doing?

[kristencurrent]

@ozark5150 how old is your son and when did his seizures start? LGS and DS have very diiferent time of onset.

[lisamichaelnovak]

Seeing this made me break down my son has dravets and they look so alike I know how u feel and it is so heart breaking. I noticed u said he was burning up that happens to my son too so what I started doing was at the start of a seizure I put.a cold wet towel on my sons head and if u ever need someone to talk to please email me anytime lisamichaelnivak@yahoo.com and I will keep ur son and ur family in my prayers everyday

[kristencurrent]

@lisamichaelnovak I tried to e-mail you last night, but the message was returned as "undeliverable." :( Would love to chat with you! You can try e-mailing me at kristen_current@yahoo.com

[twilightfan08291]

poor thing but your not sopposed to hold anyone down during a seizure

[kristencurrent]

@twilightfan08291 not too sure at what point you think I was holding him down??

[333pinkitty]

bless his little heart..

[lisamichaelnovak]

Kristen I emailed u I hope I sent it to the right email address

[zenmudhar]

He looks like a very strong boy. God bless him

[candaceplumb]

makes me cry so hard! i have a 14 month old