Generalised Dystonia Video - (part 4)

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Category:

Science & Technology

Tags:

• Dystonia
• unexplained
• movements
• muscles
• lynn
• bond
• hospital
• doctors
• leg
• splints
• walking
• feet
• FES
• treatment

[lynnbond123]

Dear Zcaism, testing would be quite hard, as twenty odd genes are now know to cause dystonia, and if someone is found to be a carrier, they may never develop the illness themselves, but may be capable of passing it on.

[lynnbond123]

Dear DanceLoveLily, thank you for your comments. Some people can feel that dystonia is caused by stress, but i know all far too well that this has never been the case for me. Yes stress makes the condition worse, but doesn't stress makes all illnesses worse?

In terms of medication, some forms can give bad movement problems. We are all different, and all respond to treatment in different ways.

I wish you all the best.

[keriquacka]

I think your positivity is very inspiring and you're very brave to share your problems so openly :) I sincerely hope your treatment is successful, Good luck xxxxx

[lynnbond123]

Thank you for your comments keriquacka. I will keep everyone posted on progress.

xxxxx

[CherylSpeaksOut]

brain EEG, I thought that was for seizures only. I had a postiive one for seizures I also have. I was going to research re EEG's and dystonia movement disorders, I have the spasmoic and slow and rapid jerking of whole body (andseizures and moe) ur attitude is good. I am working on mine. thx 4 posting check otu WEGO HEALTH

[lynnbond123]

Dear Chery, thank you for your message. I must make a correction. The test I have done was an EMG test, which is a nerve conductivity test. It revealed that I have only faint F waves in the legs. The new treament I will be trying will increase these waves. However, I feel it could be too late to venture in this direction. However, I always think to myself that there are much worse things in life, so I aim to be happy.

[zcaism]

is there any way to test for this before the symptoms fully appear

[DanceLoveLily]

IDK wut the heck I have O.O If I get stressed or think too hard (I know funny right :/) my arms and legs start to twitch and spaz. Same happens with certain medicines...it's quite annoyin cuz my whole arms and wrsts will start twitiching and it feels like suger is running threw my veins so to say...May sound confuzing but my parents think it may be part of ADHD thats why i have to excersise a lot, but this has only been happening recently... and i just had my 5th concussion.had my 4th last year

[plushbanana]

my Dr. thinks I have this

[kzee28]

i have the same problem in my feet ..... but wearing two aircast..... what else have you worn on ur feet ?

[shaynapulley]

Thanks for sharing with us!