@LuisLomeliMD - It IS fortunate that it's rare in the U.S., but the BAD thing about that is many doctors/nurses didn't/don't know how to treat it. I thank God that they have more information available now about this. I am a survivor of this disease as well as MY BROTHER! Can you imagine 2 in your family having the disease for it to be so rare?? Anyway, I got it when I was 12. I'm 32 now. My brother had it when he was 2. He's 34 now. So I thank God everyday for our life.
I think we are all thinking of the Littrells. I know that sweet little Baylee is in the best hands possible. Brian and Leighanne wouldn't accept anything less for their son. I don't think the condition is hereditary per say because something would have shown up on the initial scan when Bay was born in 2002. That being said I also don't think Brian's History can be counted out completely. Regardless I am glad we and the family have a diagnosis and can get focused on beating this thing. Love you
It's uncommon in America really? I know a kid who is 6 and just got diagonased. He's Baylee Littrell. His dad is Brian from the Backstreet Boys. Will everyone need surgery? I'm, just wondering. Brian had heart surgery for a V-sep in his heart. Is it hearitary? I'm really worried about him. I love Baylee and Brian.
I am an American married to a Japanese living in Japan. Our son was diagnosed with Kawasaki and just released from the hospital today. The hospital (Musashino Red Cross Hospital) was the place here in Japan where Kawasaki was discovered. According to hospital doctors, treatment within 5 days or earlier prevents problems in the heart later on. In this video it says you should wait out the first 5 days and treat within 14. I am wondering if Japan and US treatment is slightly different?
Very good video & topic. Fortunately Kawasaki disease is uncommon in the United States; I had one case. Continuity of care with a known provider that a family trusts enhances the quality of care, especially in rare syndromes, as Kawasaki.
@LuisLomeliMD - It IS fortunate that it's rare in the U.S., but the BAD thing about that is many doctors/nurses didn't/don't know how to treat it. I thank God that they have more information available now about this. I am a survivor of this disease as well as MY BROTHER! Can you imagine 2 in your family having the disease for it to be so rare?? Anyway, I got it when I was 12. I'm 32 now. My brother had it when he was 2. He's 34 now. So I thank God everyday for our life.
neetrab 1 week ago
I think we are all thinking of the Littrells. I know that sweet little Baylee is in the best hands possible. Brian and Leighanne wouldn't accept anything less for their son. I don't think the condition is hereditary per say because something would have shown up on the initial scan when Bay was born in 2002. That being said I also don't think Brian's History can be counted out completely. Regardless I am glad we and the family have a diagnosis and can get focused on beating this thing. Love you
Nipbsb 3 years ago
It's uncommon in America really? I know a kid who is 6 and just got diagonased. He's Baylee Littrell. His dad is Brian from the Backstreet Boys. Will everyone need surgery? I'm, just wondering. Brian had heart surgery for a V-sep in his heart. Is it hearitary? I'm really worried about him. I love Baylee and Brian.
LittrellCarterLover 3 years ago
I am an American married to a Japanese living in Japan. Our son was diagnosed with Kawasaki and just released from the hospital today. The hospital (Musashino Red Cross Hospital) was the place here in Japan where Kawasaki was discovered. According to hospital doctors, treatment within 5 days or earlier prevents problems in the heart later on. In this video it says you should wait out the first 5 days and treat within 14. I am wondering if Japan and US treatment is slightly different?
nimstar2008 3 years ago
very eloquent, very clear. Thanks!
mobitz57 3 years ago
Very informative, especially incomplete KD
rajiv2c 4 years ago
Very good video & topic. Fortunately Kawasaki disease is uncommon in the United States; I had one case. Continuity of care with a known provider that a family trusts enhances the quality of care, especially in rare syndromes, as Kawasaki.
LuisLomeliMD 4 years ago