06-23-10 Living with Lupus DVT and Pulmonary Embolism part 1
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I wish you nothing but the best I was dignosed a few weeks back ...If you are on FB there are a few gorups for lupus...There is a closed group called Lupus Warriors and a few others Cure4lupus...and just one called lupus ...I feel you when I found out I cryed and cryed ..went to the Dr today and scared them so bad they were going to call the ambulance ..they would not let me leave for a min and kept useing wet cloths on my head and drying my tears..the told the ER I was on the way
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I feel for you. You should join our group on facebook. It is called pulmonary embolism awareness. Have you had your homocysteine level checked. I live in New Orleans and go to a bleeding and clotting disorder clinic. I don't have lupus but I have MTHFR and Factor XII with hyperplatelet function. I've had 13 PE's, 11 strokes, 100's of TIA's among other things. God Bless you. Lupus is catogorized in bleeding and clotting disorder groups. My prayers are with you.
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I am listening to you and you are telling my story almost exactly! I had my PE in 2009 and just got diagnosed with Lupus this year. Thank you for this video as I felt so alone in this.
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Thank you for this heartfelt video. I have pulmonary embolisms in both lungs right now and im scared. I also have been tested for lupus because i have all of the signs and problems. Thanks again
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What a powerful testimony. I feel ya brother..Find that one scripture and meditate on it. Replace all those scary thoughts with a Psalm. Thanks for opening your heart and sharing. I can tell its still difficult so I'll be praying for you
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Wow. Eddie. Thank you for sharing. My thoughts and prayers are with you always. Stay strong. Keep smiling. And thanks for educating us. God bless you.
Miguel
man i wish u nothing but da best my daughter's mom just passed away from lupus she was only 28yrs old so continue 2 keep ur head up and you'll be in our prayers
simsdale 6 months ago
@simsdale thanks. i was actually diagnosed when i 28yrs old.. I am 32 now. Everyone's severity is different and its so unpredictable. I still struggle with alot of other health issues because of it but i remain strong. Thanks for the prayers really appreciate it.
BXblazED 3 months ago
i know what you mean. its crazy. hope you the best.
salcedo199 1 year ago
@salcedo199 thanks
BXblazED 1 year ago