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Kiera's Story

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Uploaded by on Aug 24, 2010

This is a video highlight of Kiera, age 4, who is affected by CDKL5. CDKL5 is a devastating neurological disorder that has robbed over 200 children worldwide of a norma life. Most of the children and young adults with CDKL5 have terrible seizures, and are globally developmentally impaired, requiring around the clock care. Most children cannot walk, talk or feed themselves. Kiera is one of the lucky ones, she can walk, ride a bike and is learning to talk. Please help our children with CDKL5 by going to www.cdkl5.com to learn more about this disorder and to Donate....your help is desperately needed. Thank you for watching.

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  • OMG MY NAME IS KIERA TOO THAT BABY IS SO FREAKIN CUTE

  • Hi my name is also Kiera spelt the same way but I'm 13 I have had some mest up stuff happen to me when I was 5 and 9 I got raped and because of this my life will never be the same no matter how much you are criticized for your differences never let nobody take you down no matter how rude they are never EVER let it get to you. You let that little angle know that for you. God bless your souls I wish nothing but love and good health for little Kiera and all her family -3

  • She's so pretty!! and she IS like the other children for sure no matter what! :)

  • bonjour, ma fille est atteinte par une délétion du cdkl5 et moi aussi elle a beaucoup de chance car elle est sur le point de marcher elle a 2ans1/2. Elle fait beaucoup de progres. J'ai été super touché par votre vidéo et cela me donne confiance. bon courage

  • what a beautiful little princess. You can clearly see how much joy she brings to her family. May God bless her and hold her tight. x x x

  • hoe do u pronouce the namee???

  • God bless her and keep her, what a beautiful child.

  • Bless her - she is beautiful!

  • So beautiful!

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