Progressive Multiple Sclerosis
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I totally agree with you. All the drugs are always for people with R/R MS because that's the common type of m.s.
About 75% of people who have m.s. is r.r. 10-15% is only primary proggressive.
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Alot of good info.
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@ProgressiveMS Could you tell me what your first symptoms were and how they progressed? Feel free to PM me your answer. Also there has been an ms vaccine called neurovax that halted progression in all forms of MS but the company just filed for bankruptcy.
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please kkep up the good work to bring hope for all those who live with this terrible disease
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I have been secondary progressive for about 4 years after being relapsing remitting for 14 years. Please keep studying the progressive forms of MS so that we can have hope, too!
Thank you!
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Thanks. Progressives don't get the attention they desperately need. I was diagnosed in Oct. 2009 and I'm rapidly progressing. If the Mayo Clinic in the Phoenix area has a need for any research subjects, I would love to volunteer.
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I am so glad that you are woking on studying progressive MS! Thank you for doing this!
Hugs,
Angela
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Please keep up this research!!!!!!!!
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good grief!
I absolutely agree- nobody seems to know or care about we people with progressive MS. All the drugs etc are always for people with R/R MS.
ProgressiveMS 2 years ago 3
The problem is all in the numbers. Drug companies research and manufacture drugs which will bring them the largest profits(though to be fair,they do provide money and resources for research which won't bring in a rusty penny if it will help a large number of people).Those of us with progressive MS are a very small subset of a disease which is itself considered rare(don't you feel special?)So the drug companies aren't interested.Our best hope lays with researchers like the one in this video.
QuiglysMom 2 years ago 2