A journey of hope and understanding. Filmaker and producer Daneen Akers, along with her mom, talk with KUSI's Sandra Maas about the the making of the film "Living with Fibromyalgia" FM. See http://www.livingwithfm.com for more info.
I was diagnosed while in Iraq; ever since then for the past year it has been for me an uphill struggle to combat the ignorance of my supervisors, my team, and the unending personal frustration that I have since I am both a very active person and have had to start to readjust this all. The saddest thing is that I will be loosing my job as a result of the complications and what I feel is deterioration. My employer does not follow ADA, they just fire you and send you home!
your not alone. I was into track in school. I worked for the RCMP - Royal Canadian Mounted police. I use to run 12 KM a day. Everyone thought I was a hypocondriac and I was finally diagnosed 4 days ago. I think several events lead up to this for me. Rear ended 3 times in my suv, RCMP training accident which herniated a disc in my back (5 years ago) and I fell 8 feet off my roof (2 years ago). So I know how your feeling...your not superman and I'm not wonder woman. Good luck.
I was diagnosed with Fibro 4 days ago. I've been having episodes for approx 5 years now and everyone, including my doc, thought I was a hypocondriac... thank you so much for doing this film and video's... Bren in Victoria, British Columbia, Canada...
Iv been diagnosed with Fibromyalgia eand Raynaud's Phenomenon.
im 17 years old and im finding it really dificult to explain this to my parents.
My parents only speak Arabic. However, i can't speek it very well so its really hard and they just dont get it.. My mum just thinks im lazy and i hate that..
And its true.. im glad that atleast now iv found a name for all this pain :P
i went almost 7 yrs before i was diagnosed! thank you for this film. :)
trailertrash128 6 months ago
thank you for posting this, i was having a bad fibro day and this reminded me to stay positive :)
joannasyze 1 year ago
the hardest thing for me is how I am seen by others and how family and friends dont understand it.
crewlla 2 years ago 2
Ditto ditto ditto Thanks you for removing the invisible cloak
ieddy888 2 years ago
I was diagnosed while in Iraq; ever since then for the past year it has been for me an uphill struggle to combat the ignorance of my supervisors, my team, and the unending personal frustration that I have since I am both a very active person and have had to start to readjust this all. The saddest thing is that I will be loosing my job as a result of the complications and what I feel is deterioration. My employer does not follow ADA, they just fire you and send you home!
mariephoto2012 3 years ago
your not alone. I was into track in school. I worked for the RCMP - Royal Canadian Mounted police. I use to run 12 KM a day. Everyone thought I was a hypocondriac and I was finally diagnosed 4 days ago. I think several events lead up to this for me. Rear ended 3 times in my suv, RCMP training accident which herniated a disc in my back (5 years ago) and I fell 8 feet off my roof (2 years ago). So I know how your feeling...your not superman and I'm not wonder woman. Good luck.
mamamonkeybutt 3 years ago
I was diagnosed with Fibro 4 days ago. I've been having episodes for approx 5 years now and everyone, including my doc, thought I was a hypocondriac... thank you so much for doing this film and video's... Bren in Victoria, British Columbia, Canada...
mamamonkeybutt 3 years ago
Iv been diagnosed with Fibromyalgia eand Raynaud's Phenomenon.
im 17 years old and im finding it really dificult to explain this to my parents.
My parents only speak Arabic. However, i can't speek it very well so its really hard and they just dont get it.. My mum just thinks im lazy and i hate that..
And its true.. im glad that atleast now iv found a name for all this pain :P
Thanx for this vid guys.
ADyingTragedy 3 years ago
My friend suffers from Fibromyalgia.
Thank you for posting this!
loveandhate1998 3 years ago
I too suffer from Fibro. Thanks for posting this video!
danielbrinaw 3 years ago