Living with EB
Loading...
Top Comments
All Comments (12)
-
The love of parents is amazing
-
OMG lucky shes still alive :.(
-
i think that if it is really serious eb ..... just from my point of veiw..... i think they should be placed to sleep ..... rather than having to live in this nightmare all their lives....
-
*sob* its so *sniff* sad
-
:""""""""(
-
@Dawoudkhalifa They kinda have a thing good for the skin. I have EB and its not bad as it looks on the video some of my skin is pink and can turn read and turn into bubbles with too much heat
-
i really miss adana she was my best friend but died when she was 10 because of eb
-
Good thing God loves us. Sure wouldn't want to be on God's shit list. Maybe EB (Epidermolysis Bullosa) can be chalked up to God working in mysterious ways... Right?
-
I believe Jonny Kennedy (may he rest in peace!) started the DEBRA foundation. Watch his story for more info.
-
My God this is heartbreaking!
3:40
Fallyn's Story - Living with and overcoming RDEBby HelpFallyn4,965 views- 3:36
End Epidermolysis Bullosa - EB Part of the Cureby christiezink16,521 views
- 5:08
Congenital ichthyosisby jmcanoy1860137,820 views
- 6:26
Boy fights disease that turns muscle into boneby 2006ami62,736 views
- 3:24
Baby Elle_Sacramento Baby With Rare Skin Disease -- KTXL.flvby artisticzeal6,089 views
- 9:44
Huy, during EB bandage change, difficult to watch!by helpinghow4,834 views
- 3:10
Adana Forsyth - Butterfly Fly Away.wmvby alijac20005,303 views
- 9:41
The Boy Whose Skin Fell Off (Jonny Kennedy) 3/5by 0utlook299,047 views
- 5:51
Gastroschisis - Peyton's Journeyby ch1ckybabe4,484 views
- 4:02
The Story of Shelby Andrewsby CherryFrog32119,986 views
- 4:17
Amanda Runyon's Storyby unforgottenangels115,280 views
- 3:32
in loving memoryby xsilentwords4x464,930 views
- 2:08
In Memory of Emma, Alyson, and Kate.by swall0wedinthesea66,951 views
- 1:41
Harlequin Ichthyosis: The Rarest Type of Baby Skin Diseaseby harhis2390,134 views
- 5:29
Huy an amazing 12 year old boy living with EB in Vietnam (very difficult to watch)by helpinghow14,807 views
- 4:35
Epidermolysis Bullosa -Mason Whiteby Laurentrent11113,634 views
- 3:32
Amy O'Neill, Epidermolysis bullosaby ctruini7,474 views
- 5:37
ABBI'S STORYby raseperich16,098 views
- 0:52
New born with epidermolysis bullosaby eric13872,403 views
I wish they can find a long term medicine and permanent one for those children.
Dawoudkhalifa 1 year ago 4