My Bad Days

Go ahead and comment below and vent about your bad days! They are not fun at all and the days when it's hard to look on the bright side.

Category:

Education

Tags:

• bigsanfer32
• bad
• day
• arthritis
• swollen
• lupus

[BIATCHONBUDGET]

I have to ask if you have gone through any hair loss. I have, and was just wondering if you have seen that.

[bigsanfer32]

@BIATCHONBUDGET In the beginning I had some hair thinning. Nothing drastic though and luckily it went away.

[BIATCHONBUDGET]

@bigsanfer32 I know your active in sports, do you have swelling or pain that day or the next day? I have so much pain today, I don't know if its the reduction of the prednisone, the weather change, or the fact that I pushed myself to far physically. Im in horrible pain.

[bigsanfer32]

@BIATCHONBUDGET Yeah, during basketball season I seem a lot more out of it than usual. My bad day was caused most likely from doing to much in one day, along with prednisone tapering.

[xocatherinexo10]

Oh my gosh this actually like made me hurt, i feel so bad for you. Stay strong, you inspire me (:

[rayhanah11]

The thing about having an illness is that you still had to go through life day by day like a normal person and the people around you don't understand what's going on.

[jazzyjay0712]

Im the same, i get it bout a few times a month. We gotta stay strong

[Landlockmermaid]

You are not putting anyone in a bad mood. Your story helps those who are suffering from the same lupus flares. Often, they wonder if their symptoms are a part of lupus or what?? I've learned a lot from networking with others who have lupus. Remember, we have an inflammatory condition, which can cause inflammation ANYWHERE in the body.. Please join our cause, through Lighthouse for Lupus 1,500 members, which is the largest FB Lupus support group. We also have our new Lupieville.. <3 VHD

[ilovemyoreobunnbunn]

Im 16 and i was just told i have Lupus

[Silentgraves]

I feel you sister... I'm 22 and after ten years I was finally officially diagnosed with Lupus. Keep fighing <3

[milkchoco2007]

hello! well i have lupus as well. since i was young. im 21 now. my feet ache and swell daily and my legs are always in chronic pain. the dr prescibed me predisone.i took four at a time. i wasnt even taking them for a week b4 i had a really bad reaction to them. muscle weakness and it felt like my back was being stabbed. have you had any of this as a reaction?? if so, what else are u taking to help subside the symptoms. thankxxx

[maecoe88]

@BIATCHONBUDGET Hey... The first symptom I had was hair loss. I went to a dermatologist and she said that the patches of hair loss throughout my scalp looked like discoid lupus but then i was later diagnosed with SLE. I have had this for about fours years now and some of the hair is growing back in the spots.

[TheAnnamarie49]

You are a stong young woman thank you for sharing your bad days,i get so depressed sometimes,and my family is great ,i amd 49 and have discord lupus,i got to the specialist next week to check for sle,i hurt so bad somethimes and i am so tired ,i have seen so many dr that it gets frustrating, good luck

[Dimitot]

@LiveHopeLupus i feel much better now thanks!i m doing great!!hope u have perfect mood too!i ll stay in touch!