FIBROMYALGIA EFFECTS MY ENTIRE LIFE

I CAN'T DO MANY THINGS NOW..I HURT ALL THE TIME..FIBROMYALGIA...DOES EXIST....

Category:

Education

Tags:

• FIBROMYALGIA
• OneTrueMedia

[artbydevon7273]

I am so glad your parents are supportive. That is a very good idea to give those brochures out. It lets you create awareness and maybe they won't be so mean to the next person with this illness. Keep me updated on how you are doing. I will try to help you in any way I can. Your Fibro friend. dev

[xSimplyAmusedx]

i am 15 and i have fibromyalgia, i cant go to school anymore or walk outside :(

[artbydevon7273]

@xSimplyAmusedx It just breaks my heart that you are so young and have this. If there is anything I can do to help you in any way please contact me. I am so sorry I got behind on my comment answers but will try to check more often now. I live with my husband and he helps me get through this. I hope you have family and friends who are helping you because as you know this is a terrible thing to endure. Just keep your faith, and try to make more people be aware of this invisible illness.

[VUPdingCLICK]

i've had fibro/c.f.s./m.e....(which has led to high b.p./diabetes)-for the last 13 years.i lost my job, my mobility,friends-my wife didn't want to know me-so i lost my kids,house,garden,cant drive anymore-am stuck in my flat 3-5 days a week,haven't slept for more than 3 hours at a time,etc......everybody else who has this-would tell a similar story.HOW CAN PEOPLE THINK WE ARE FAKING THIS? tell me,would anyone go through this-plus chronic pain,plus all the ridicule-just to get a state handout?

[artbydevon7273]

@VUPdingCLICK I know what happens when you have Fibromyalgia. I am so sorry that this has happened all because you are ill. People just do not realize how much we are suffering and a kind word or compassionate understanding can help just to make us feel a little better. You are so right. Who would want to fake this?It is just ridiculous for someone to even suggest it.If you need to talk I am home most of the time and always ready to listen and comfort someone. Take care and do not give up.dev

[pnsflgirl]

This is such beatiful works that people without Fibromyalgia can not understand. There is nothing Healthwise that compares to it. God Bless ALL Fibro Patients like me. I give the Lord all the praise that gets me through each and every day.

[artbydevon7273]

@pnsflgirl Thank-you for your Blessings for all of us. I also believe in God and he gets me through one day at a time. Somedays I don't think I can make it or even want to but I want to live. I just wish I could have less pain. I pray for us all. dev

[graveswill]

*hugs*

I got fibromyalgia when I was sixteen, I'm twenty now, and everyday is a battle to get up. I don't feel any motivation to do anything, even when I love it. I love the piano, but I never feel like playing. I hate going out. My friends don't understand they don't even take the time to research what I have, tell me it's all in my head, that I'm being dramatic. I HURT and ppl say I'm making it up! Thank u for sharing this with us, awareness of this is our only weapon to get ppl to respect us

[babysmudgeiloveu]

im 19 to and have fibro i have had it only a year and diagnosed in august. i go to a support group but everyone is older then me i want to talk to people my own age about it . sorry to hear ur 15 and i thought i was young woah

[laterdudesaint]

i got ambushed by this a few years back..nuerontin was helpful..now days i feel pretty ok..i say smoke marijuana.

i also did alot of  "magic" mushrooms..studies support the positive effects on mood.which i can say are valid..

beats suckin on a gun barrel.

[playinntraffic]

@xSimplyAmusedx The brochures are a very good idea. I know of someone who would park in a handicapped spot with FM and people would give her nasty looks and tell her how horrible she was for "faking" a handicap or "stealing" a handicap parking spot. She printed up a bunch of pamphlets and did the same thing. She even left one on her dash. People are to quick to judge us and dont have the capacity to understand what we go through. Some are just plain nosy and rude.

[playinntraffic]

On top of the pain I suffer everyday is the fatigue and never being able to sleep through the night. I dream THE ENTIRE NIGHT and never get any real rest. My dreams are so vivid and I wake the next morning feeling as if I had never gone to bed! :( Oh, what I would give for some rest and a pain free day! I pray every night asking that He just give me the strength to beat this pain, and I pray that He help all of us get more rest and that He ease our pain.

[playinntraffic]

I'm 19 and have FM. I am in a fog all the time and FM makes it really hard for me to get to all my classes. Parking on my campus is awful and I often have to park really far out and walk across campus to go to class. I am not taken seriously by my doc so am not able to get a parking placard despite needing one. The only thing they've done is give me antidepressants and say "good day" and wont listen when I say this isn't helping me. It's so frustrating having to fight when you have no energy.

[atlanticeagle]

@xSimplyAmusedx I've been there before. I've had RA since I was 1 and fibro since I was 9. I wrote my GED and got in as a pre-major to a University. Once proving myself there, I got into all of the Univerisites I applied for. Now I have a whole section of the University to back me up and help me along. Missing classes no longer becomes an issue so long as you can keep up with the work. I hope this helped you realize it's not hopeless!

[bfinfinity]

Hi, me too! But I was able to study massage and was able to figure out how to manage the pain, with special techniques that I learned. For sure, it is not easy to do your own massage but I have been managing since 06 when I got off all the pain pills. If you want to know what I am doing contact me at a a h h massage at g mail. I am planning on making some videos to show how I do this. But I don't have a place to make them, yet. Soon I hope to get started. : )

[ayllina]

Thanks for sharing ! I know how you feel because I also have fibromyalgia.

Although I'm glad that I finally find people who know what I feel, I feel so sad that all of you have to go to this hell everyday. So much pain..... And I haven't had a good night sleep in years, I'm too tired to sleep or the pain keeps me awake. Wish all of you much courage to keep going .....