John Crowley appears on the Morning Call on August 16th, 2004 as they chronicle his fight against Pompe's Disease in order to save his children Megan and Patrick
I saw the movie, its worth watching. It must have been crushing for the parents when they first found out that John's working for the company caused a "conflict of interest" so his children weren't eligible to be included in the test trials of the drug. But I'll let you see the movie to find out how he got around that problem. His love for his children is inspirational.
Today my daughter was sent a script of this story. I didn't know anything about it and luckily with youtube, I found this. I have no words to this family and these beautiful children. I cried so hard and have tremendous respect to these parents for not giving up and fighting to find a cure to help help their children and others. This is a story that will inspire everyone! Amazing, amazing, amazing! May God bless your children, your strength, your compassion and your heart!
I saw the movie, its worth watching. It must have been crushing for the parents when they first found out that John's working for the company caused a "conflict of interest" so his children weren't eligible to be included in the test trials of the drug. But I'll let you see the movie to find out how he got around that problem. His love for his children is inspirational.
jerramy 1 year ago
I believe it opens on Jan 22 actually. Love trumps all. Congratulations to Mr/Mrs Crowley and their family. An inspiration to the human race!
jv333 2 years ago
i know them
dublecc24 2 years ago
Movie about this story is coming out in April 2010 starring Harrison Ford and Brendan Fraser. Wonderful story, I will definitely see it.
barbarshadow 2 years ago
Today my daughter was sent a script of this story. I didn't know anything about it and luckily with youtube, I found this. I have no words to this family and these beautiful children. I cried so hard and have tremendous respect to these parents for not giving up and fighting to find a cure to help help their children and others. This is a story that will inspire everyone! Amazing, amazing, amazing! May God bless your children, your strength, your compassion and your heart!
luvbookie1 3 years ago