Losing Letters
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Uploader Comments (Doviedove)
All Comments (14)
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Thank you for a great video. Keep the faith :) susan
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Great video and idea to move things forward and onto VI-ctory, see you tomorrow in London.
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Hookworms? HOOKWORMS?? OMG are we in the Middle Ages now! This is preferable to vascular research in the opinion of the MSSoc and their cabal of neurologists. It's enough to make my blood boil - but even that wouldn't heat my cold feet, would it?
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great video michele.. VI, so much easier and straight to the point..
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excellent video! I know here in Canada there is a phone number that MRI/x ray techs etc. are supposed to call to confer about stents etc. being compatible with tests. Jenna Machala had quite a stand off with her MRI department and managed to get it cleared for persons living in BC that went abroad for treatment and have stents. great work!
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Hi Michele, great idea to separate VI out of MS & CCSVI. Let's see VI treated in its own right! Best of luck in your endeavours to see this through. As always, I stand with you guys albeit it from 10,000 miles away. :o)
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great talk - would love to hear more about the history of the m.s society - thank you
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Thank you all, as ever I was helped by Kevin to refine the reasoning and arguments. Do what you can to pass it on to anyone who you think might be interested. @ SHIRLEYRENSHAW I'd be grateful for anything you can do to circulate it.@Lynneheal, Thanks Lynne. I always aim at honesty and rationality.
Doviedove 10 months ago
I managed to get a GP to refer me to a supportive Vascular doctor but he cannot persuade the imaging dept in my hospital to do a Doppler scan on my IJVs - because I have MS- but he has arranged a scan for venous insufficiency in my legs! My doctor's rationale is that he may be able to work up the way... When I see him though I intend to make it clear what a stupid situation this is and make a formal complaint to the NHS via my PCT. I like the beaver! The MSS certainly does not act for us. A
STINGOALI 10 months ago
@STINGOALI That's the way to do it... How can they deny people treatment because they have MS. I'd like to keep in touch with you STINGOALI because you might be the case we need to go to court with.
Doviedove 10 months ago