Mayo Clinic Myelofibrosis Study
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It would be interesting to know how many people with the myeloproliferative disorders were exposed to environmental hazards such as benzene.
Benzene is a known carcinogen. Does anyone see a pattern in related disorders with children? I read a case study done in Sweden but there were so many numbers that my eyes glazed over. I wish they would have summerized it : )
TheTami1965 9 months ago
I hate this disease my father died from this ugly disease within 6 years after getting it. His platelets went down to 17,000 and he had a brain bleeding and passed away. Its so sad that not enough research is done on this ugly disease. By the way my dad was around paint and gas all of his life BENZENE which could be the cause.
ASAL48209 2 years ago
I was in the Revlimid Phase II I finished my six months but unfortunately it was toxic for me. It began great the first few months while on the prednisone, then when taken off the prednisone my counts began falling. I did my study thru MD Anderson with Dr V. I have been holding my own since, but might have to return and do another study. My platelet count has been resently dropping to the 40's and 50's for no apparent reason. Thank you to all the reseachers fighting for us to live!
Ditey55 2 years ago
Excellent information! Thanks
lexuskbe 2 years ago
Thank You!
russell56443 2 years ago