Miracle Baby Fen Finally Wakes Up in the NICU!

This is the video taken (back in November) a few hours after he was finally taken off the ventilator. He is awake and conscious here for the first time since he was born. They're not ready to move him from the ECMO bed yet just in case. He is still very sick here from the eColi and strep-pneumo bacteria in his blood, but the blood and meconium are finally clearing out of his lungs. He also has pneumonia and pulmonary hypotension when we videoed this. He's lost that extra pound of fluid and is back down to his original birth weight. He has to have a spinal tap right after this to test for meningitis. His doctor says it is very likely that he has it because of the 2 types of bacteria in his blood... well, we know the outcome of that! He seems so happy to hear our voices and immediately calms down when he hears us. As soon as we turned the camera off he smiled... we didn't get that on video, but we did get a still shot of it! :-)

Category:

People & Blogs

Tags:

• Miracle
• Baby
• Fen
• NICU
• ventilator
• ECMO
• sepsis
• EColi
• meconium
• strep-pneumo
• respiratory
• distress
• hospital
• Cooks
• neotatal

[Angelique2270]

GOD BLESS HIM, YOU AND YOUR FAMILY! My Friends son was born with E Coli meningitis was your baby? If so how is he doing now? Even if he wasn't how is he doing now? If he was born with E Coli Meninigitis cold you please share your story so I can pass it on to my friend. Her son is good now for the most part but lately he has been getting sick every other week and she wants to talk to someone she can relate too! Thanks and God Bless! He's beautiful! <3

[krisnrandall]

Hi Angelique,

Thank you so much for your comment. Not only was Fen born with E-Coli, he also contracted strep pneumo bacteria AND aspirated blood and meconium. He went into severe septic shock and respiratory distress--a quadruple whammy--his oxygen sats wouldn't raise above 50%, so he was transferred again to Cook Childrens to be placed on ECMO, which most babies don't live beyond their first bday and those who do have severe mental retardation.

[krisnrandall]

He was given virtually no chance of living by the doctors, but overcame all of it--with NO developmental delays of any kind. He's two now and as smart as can be! Let you friend know that it takes a while to get over the trauma, but every 6 months I notice a huge difference in my peace of mind. Tell her to email me if wants. We're writing a book right now to share our story and others that is in the editing stages right now. Pass on my love and hope

[1992peter]

I didn't see any leads on his chest.

Is he off his monitors in this video?

He's cute.

GOD BLESS

[krisnrandall]

thank you!

and he's doing great now!

the leads are under him on his tummy. he was on monitors until we went home. they he still had to have his oxygen sats, blood pressure, and heart rate monitored here and for his whole stay. they had to put him on his stomach for the first 12 hours when they took him off the vent because it's less stressful to breathe with his injured lungs.

[krisnrandall]

were you the one who asked if it was hard to see him on the oscillator in the other video? if so, i accidentally deleted your comment but still responded.

[dogdoo4brains]

Aw! He is so precious! I felt so sorry for him; seeing the poor baby on all those tubes and machines just about made me cry. Clearly, he's a fighter though. I hope he is home now and has a clean bill of health. Peace be with you.

[OLFbubbles123]

Aw... he is so cute. I'm sure he will be alright. You have my prayers.

[936justme]

Beauuuuuuutiful!

[MiSzManDyPanDy]

O m g bless your adorable sweet little baby so cute omg i want a baby they are so precious (to young but when im ready i want 2 lil babies) anywayz i think your baby is adorable and i hope all is well, god bless x0x0x0x0

[fushagals]

He is SO cute!!! I hope by now he is home and doing well, and if not, then I am very very very sorry. You sound like a very caring mother, he is not only your miracale, but for you showing us this video, he truly is ours as well. <3 best wishes.

[ladams1487]

God bless you and ur beautiful boy. Its amazing he overcame so much and is a happy heathy little boy! truely amazing

[jgibson111]

Awesome and amazing! He sure did respond to your voice. Hope all is still well. Thanks for sharing. Good luck and God bless.

[freddythecanine]

he had poo in his lungs?

[uchihachild887]

he's precious.

was he born ceasarian?