Cluster Headaches: My POV on Excruciating Pain!

I'm no expert. This is a kind of POV/PSA in which I describe the little known 'Cluster Headache'...maybe helpful to those people who are experiencing this rare and really painful type of 'serial' headache. They are dreadful, but it was a relief finding they are benign despite the intensity of the pain. I thought I was going to die from a brain hemorrhage until I accidentally read about my mysterious condition in a random magazine article.

P.S. Thanks to all the YouTube-Clusterhead community! You get it...you REALLY get it! It is great to know I'm not alone: no longer do I need to have these monstrous headaches diminished by well-meaning (?) people who do not know what they are talking about. I honestly believe that experiencing the monumental pain of a Cluster headache has made me a stronger person: Anyone who can withstand this level of pain can endure anything.

Category:

People & Blogs

Tags:

• Cluster Headache
• Sucide Headache
• Migraine
• Pain
• Tumor

[spike0391]

im almost 20 now and i have been getting headaches like this since the 7th grade. there are differences but this is the most accurate i can find of what i get. always on the left side of my head, i can feel the pain in my eye and side of my head right to the back of my head. they always come around late winter/spring time and are generally at the same time each day and last about an hour. the pain is great, it seems mild compared to most ive seen. do you think they could be cluster headaches?

[AtLastTheCatsBack]

@spike0391 I'm no expert, but that sounds very close to mine...could be clusters. Luckily I sorta 'outgrew' mine...I still get a very weak version of CH on rare and unpredictable occasions...and those now take days to go away...and remind of the horror of when I was getting the intense full-blown ones.

[MrClusters2009]

You OBVIOUSLY know what these mosters are. Sorry! I too am a sufferer, episodic for 12 yrs, chronic for 11 yrs now. The ONLY thing I disagree with is the comment you made that these "Are harmless". Sorry, I have to disagree. Why would they be dubbed "Suicide Headaches" if they truely are "Harmless" ? The thing with you is that you know yours are going to stop ... chronics don't feel that way and life seems to come to a stand still at times and depression and the feeling of being "DOOMED" sets in

[AtLastTheCatsBack]

@MrClusters2009 'Harmless' only the sense that Doctors can find no indication of pathology or 'brain damage' even with the most advanced MRI, which I've had...the 'collateral damage' you mention in your comment is immeasurable. I'm always annoyed when somebody casuals says 'Oh, it get those'...and has NO idea devastating these abominable headaches are.

[ingion1]

hey cat happy new year my friend!and stay always pf :)

[AndyRCO]

Hello friend, I watched your video & know oh too well about the CH's. I suffered for 20 years with the debilitating headaches, but have been cluster free now for 8 years. During my 20 yrs. of suffering on & off, I found a natural remedy that knocked the headaches out instantly, before they could even manifest into a full blown cluster. With the grace of God they are gone for good & I couldn’t be happier! Possibly it can help you too. I made a video that explains. Wishing you the very best. Andy

[Zimstube]

Yup. That describes it to a T. I was obviously misdiagnosed a couple times. They said I had sinusitus. I can go 6 months at a time with nothing then (I think with the weather change) i get it for a couple weeks. Sometimes I have 1 attack a day or it could be a dozen.Just recently I passed out in my bedroom from the pain. Woke up on the floor. I didn't know what happened until I felt the end effects of the attack as I got up.I've been attack free for a week and hopefully wont get one for a while.

[lassoe]

@pmhysell I have heard about that, but I have never heard it from a woman herself... I have suffered from CH since i was 14.. I am turning 30 soon.. Only recently, I found out that there is a "Hortons syndrome" (CH) club here in Denmark.. One of the persons in that club mentioned, that a doctor here in DK used a new method.. He inserts a sort of "freezing needles" (?) in the back of the patients neck, and freezes some certain nerves.. The person I talked to has never had an attack since.. :-D

[dammit1388]

@AtLastTheCatsBack Thank you for posting this. Now I know, without any doubt, that I am not alone. Hopefully this will lead to some kind of treatment or lifestyle change that will keep these goddamn things away.

[JoanBeatrington001]

im getting a suicide headache from watching all those pictures spin on the screen.

[friscoful]

hi their my name is jacob I will be posting free video on you tube soon a reprieve from your pain not a cure but a difinate releif for most .cluster sufferas

[lalotato]

@pmyshel did you get CH while pregnant? If so how did you deal? Could you take medication? It's so scary to think I couldn't be able to medicate this pain. I would commit suicide.

[pmhysell]

@itsallamindgame I am a woman. AND YES, it is worse than childbirth. There is nothing I can compare it to. I tried meditation, I have tried accupuncture, I have taken so much drugs that nothing helped the way I NEEDED it to.

[pmhysell]

@itsallamindgame i lived with clusters for 6 months, usually 3 a day. Worse ones were at night after 2 am. I thought death many times in that first bout. NO one would get me, or understand where or what I was going through. morphine, maxeran, gravol and o2 were the only edge cutters for me. I would hallucinate, I lived in Darkness. They said it was Iritis, Epi scleritis, scleritis