Living with ENS

This video is the story of what happened to me after an ENT named DR. Natasha Keenan performed an unneccessary surgery on me called a turbinectomy. She cut out organs in the nose which are imperative for breathing.

Category:

Science & Technology

Tags:

• nasal
• nose
• surgery
• empty
• syndrome
• turbinates
• alloderm
• allograft
• septum
• septoplasty
• turbinectomy
• sinus
• surg

[danielscissorhands]

I have ENS too, but I don't understand how your surgery could have affected your teeth. Are you sure you don't also have body dysmorphic disorder?

[sokoens]

@danielscissorhands I chose to post this video in hopes of raising awareness about ENS. According to the medical world a turbinectomy causes no side-effects. This is untrue, myself and many others have had their lives adversely affected by the aggressive removal of healthy tissue, bone mucosa and cilia from the nasal cavity-a turbinectomy. I am simply sharing my experience. Either it helps you or it doesn't. Thank you for watching the video.

[mightyPavan2010]

to soko: neilmed sinurinse may help with symtoms

for further read Chris Martin's Book : Having nasal surgery, don't become an empty nose victim!

Stay strong friend :)

[sokoens]

@mightyPavan2010 Thank you. I do use the neilmeid sinurinse and it helps with the symptoms and I have read the book. Great suggestions.

[MARKNASRI]

I have ENS since I was 18 years old, now I am 53. Believe me no body understands the pain and trouble we are in it, even my children sometimes they think I am imagining it. I can not even secure a job since I can not remain focus other than my nose.The hospital you said is it in Toronto, Canada, because I have been there several times. However I have learned many things to cope with this problem which are all non permanent. Please email me at nasri2020@yahoo.ca

[sokoens]

@MARKNASRI Hi! tried to e-mail you but it bounced back. I totally relate to the work thing. Working on healing as much as I possibly can from ENS, an iatrogeinc illness, meaning an illness caused by a doctor. This is a slow and difficult process.

[TheEmpowered787]

You're gorgeous!

[kenny5822]

@hystria, to be more accurate, the turbinate is a structure, not a bone. The structure is bone covered in blood vessels, spongy/vascular tissue as you said, and then the outer layer. The turbinates can be safely reduced from the inside to an appropriate extent. They shouldn't be damaged from the outside, or removed to any extent (can cause ENS). I had reduction done a week ago and waiting to feel better. Too little space to say everything I want to so I'll stop.

[mastergp11]

ENT docs are full of shit.they are money grubbin criminals.the crook told me that he was gonna do a minimally invasive procedure called Balloon Plasty for around 1200.00 and it would open my sinuses in 15 minutes.That dick head put me under anesthesia and did major sinus surgery to include taking out my turbinates and bones.Dr.Brager from Virginia ear nose and throat in Richmond va charged...to include hospital and the rest of the feeding frenzy totaled 61,000.00.Barack Obama is trying to fight

[hystria]

Part 3. When lying on one side, the lower turbinates slowly fill with blood and dilates, thus telling the brain when the body has been resting on one side for too long. Its the reason why we unconsciously change position during sleeping. If one or more turbinates are reduced, the quantity of blood running into this bones makes the remaining turbinates to increase in volume too much and the nose became stuffed during night time. I have this problem permanently since the surgery.

[hystria]

Part 2. I had turbinate reduction two years ago. Before the surgery, I never had problems with nose dryness no matter the place where I was sleeping. Now almost always my nose dries during night time. The worst is however not the dryness. The turbinates are spongy bones that have the property to fill with blood and to dilate or to shrink when the body is lying down.

[hystria]

Turbinates are six long spongy bones filled with blood, three on each side of the nose. This bones have two important roles. First is to humidify the air entering the lungs with their very large mucous surface inside the nose. The second role, is to reposition the body during sleeping. First, if the turbinates are reduced by any amount, the humidifying surface is greatly reduced and the nose will suffer by permanent dryness during night time.

[kenny5822]

@danielscissorhands, all your false diagnostics apply to yourself: sociopath, living in your mom's basement and hypochondriac. Look at your comment to her. You said "Are you sure you don't also have body dysmorphic disorder?". What was your basis for that? In the same light, are you sure you dont suffer from narcissistic personality disorder? Give me some scientific reasoning as proof that you dont suffer from that. I'm also detecting depression, meglomania and perhaps anorexia nervosa in you.