A bit about Multiple System Atrophy

MSA Multiple System Atrophy. This condition is similar to Ataxia and Parkinson's. People usually die within 6-10 years. Survival becomes based on the help of others and on monitoring swallowing and issues due to lack of movement

Category:

Science & Technology

Tags:

• msa
• multiple system atrophy
• ataxia
• parkinson's plus
• parkinson's

[Drkadrk]

How long ago was your mom diaged?

[curemsa]

She was initially diagnosed with Parkinson's disease in 2003. In February of 2007 or 2008 was when they began referring to her as having "Parkinsons-plus". Thanks for your comment. So sorry you lost your mom to this.

[roniron22bd]

I am a doctor at NYU. We are doing a clinical study on MSA, we also do a clinical trial of rifampicin for patients with early MSA. Feel free to contact me for more information.

[MissVelvetElle]

Thank you~God Bless --I recently found a great radio station with lots of encouraging and uplifting shows-it's called Hay House Radio (it's online and free-apps too). It helps me a lot ~ you may want to check it out :)

[tangerinetigerr]

HI; i feel her/your pain; i used to play guitar; then i learned to play piano by

ear; i played a 9-minute piece of classical music 2 years ago in a talent show;

then DC t00k my hands away from me; i can barely eat properly; i cry inwardly

daily as i wrote many songs, mostly instrumental, and saved them on my PC;

THEN i was in the hospital for almost every week for 9 months only to find

that my PC crashed, with all the music gone; i can not play it again; please

PRAY for all with DC. Hugs!!!

[tangerinetigerr]

Thank you for sharing, curemsa. This feels like a support

group. It does g00d to talk. =]

[deathofisrael]

@brandonlaner

You got mail !!!!

[brandonlaner]

@deathofisrael Please give me any information you have on your healing. exact diet? whatever? me and my family would really appreciate this. my mom is now about 5 years along in the disease and we have tried everything except natural, i would forever be in your debt.

[SurrenderPink]

@DFunkTTT Currently, stem cell therapy will NOT help patients with MSA or other neurological disorders. All claims otherwise are 100% fraudulent. According to Larry Goldstein, is one of the nation's leading researchers in stem cell treatment, viable treatments are still 5-15 years away. Look into all the hoaxes that 60 Minutes uncovered and save yourself and your family additional suffering.

[SurrenderPink]

Thanks for posting this and sharing your Mom's story. I hope your entire family finds the peace it deserves.