Dystonia 10-18-09 part 1
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it looks like you dystonia respodes the same way mne does if you touch the muscel i stoppes doing what ever you don't want it to do
cyclops61008 1 month ago
This is very sad that ppl go thru this kimd of stuff. Next te dont ask if she needs help, just help her!!!!!!
killa1mantis 3 months ago
Poor woman. She looks so young too. This really saddens me
JasonlVlraz 3 months ago
I dont have this condition, but my heart truly goes out to you. Sadly I didnt know of this condition until recently. (I have recently started a job as a unit secretary in a local hospital and i am learning/seeing so much..) I am glad you have someone to be there with you so willing to help even though you seem independent even through an episode. And from the comment below, if that supplement helps others maybe it will help you find relief. *HUGS*
Psychokitty0889 5 months ago
PLEASE look into sinemet. It's a Carba-Levadopa supplement that has helped me live like I virtually do not have dystonia at all. I don't know if you would be responsive, but please look into it.
gothrottle 5 months ago
I hurt for you so much.I feel that charlie horse and the internal tremor. I see the gait ataxia and the head rushes. Those "stuck moments" really hurt. I call it "guitar string".I hurt for you. It looks like I am watching me. God bless you.I have all of this and it just kills me to see you suffer. Please know you are not alone.
SamiBebe2 5 months ago
I also have a movement disorder, presently still under testing. But it's a blessing to see you have help and support from someone who cares about you. My husband has become a fantastic care giver. God bless you.
dmgodfrey 6 months ago
I understand how you feel, I too have these episodes. I am a 31 year old mom with dopa- responsive Dystonia.. Take care and I hope you have less and less attacks. They are really upsetting and exhausting. Believe me I know all too well. We have a lot in common, remember you are not alone.. There are more of us out there only people with Dystonia will ever understand Dystonia and how it really feels.. Help is out there.. Dystonia Research foundation can help.
mckeehanrenee 7 months ago
what form of dystonia do you have and do you have any sustained muscle contractions or do you have "episodes " what treatment plan are you following?
ojpiper 8 months ago
i m so sorry ms kat:( i hope you are fine today...are painful this spasm?:( a kiss from italy
dnctz 10 months ago