Friedreich's Ataxia; Brooke's journey from majority to minority

In 2002, I was 13 and got diagnosed with a rare neurological disorder called Friedreich's Ataxia. have done a lot of interviews in the past 10 years, since diagnosis, and they always ask me the sad question about how negative it is. I want people to see a positive side to FA, it needs a cure but our life is not pointless just because of it! Visit me at www.facebook.com/thebigseester and www.bigseester.com

Featured music:
My Girl - Temptations (COVER by Jim Ziegler)

Your Hands - JJ Heller

Category:

Nonprofits & Activism

Tags:

• awareness
• Brooke's story
• FARA
• Friedreich's ataxia
• nuerological
• disorder
• Muscular dystrophy
• bigseester
• brooke ziegler
• my girl
• MDA

[devine124]

Thank you for this video. I can't wait to show it to my 11yr old with Fa. She needs to hear others speak out positively.

[bczieg1988]

@devine124 Makes me sad to hear you daughter has FA too. I hope she knows she is not alone with this and I hope she enjoys this video.

[sunshine4mama]

Beautiful....you & the video!

[bczieg1988]

@sunshine4mama you're kind, thank you!

[MrDojodojo]

Inspiring. God Bless



[bczieg1988]

@MrDojodojo Thanks

[QBKT1987]

I created a You Tube account just so I could post a comment. I wanted to say that you are an inspiration. I have a cousin who has FA, but like you, she is not defined by it. You are an amazing person. They WILL find a cure. I, like so many others, was totally ignorant to even the existence of this disease before I had a family member diagnosed with it. Since then I have tried to share my awareness with others. We are always stronger in numbers. I will share this video with many. Thanks again.

[bczieg1988]

@hplazable Yes the cure will be here soon!

[bczieg1988]

@cspad37 I am glad it inspired you. I hope your grandchildren get inspired too!

[cspad37]

thanks for the inspiration Brooke. My grandchildren Andre 16 and Ashley 13 were diagnosed last year. I too cant wait to have them see this.

[hplazable]

Wonderful video - my son (22) has FA - the cure WILL come, Brooke - keep that smile shining and keep the great attitude! Blessings!

and we'll all have free drinks someday!!On me!!!

[haycc454]

You are such an inspiration!