ME/CFS Suffers

songs: delta goodrem - be strong /// mcfly - not alone

Category:

Education

Tags:

• ME
• CFS

[fogggygyrl]

If any of you are also sick all the time I wish you would talk about that in the video as well because this video makes it sound like you are all just tired and that only one of you is in intractable pain all the time. Good effort on the video and I suffer from the same illness so I do understand how horrid it is; however, we need the world to know that ME goes way beyond just being tired.

[sjanetaylor]

@fogggygyrl hi, i understand what you mean but this video was not made to tell the world about m.e itself but about the people with m.e from their own words

[amylouisemartin23]

Thats great steph gunna show it to some of my friends to make them understand a bit more than what they already do :)

[sjanetaylor]

kl :) xxx

[sjanetaylor]

thanks :P xxx

[KateWhittingham]

Brill Video!!

Thank you for putting me in it :)

[sjanetaylor]

no probs :) xxx

[HeatherWarsop]

I've had it for 6 years, I'm 15 and it's still getting worse, I'm not bed bound but I rarely leave the house :(

[tinselPixie]

Oh wow, I relate to SO MANY of the viewer comments and comments in the video. We "look alright" therefore we "are alright" in the eyes of many. I'm lucky, I get spells of bad days and I'm never full of energy but at least I'm not flattened by it all the time, just sometimes. I hear you about getting bored...30 things I'd LOVE to do and no energy to even get off the couch some days. Hang in everyone...sorry you're stuck with it too. People sure are quick with "quick fixes" aren't they?

[spacedreams2111]

good video.

[essy111]

I recommend a really good book called THE JOURNEY THROUGH ME/CHRONIC FATIGUE SYNDROME by JANET HURRELL. Its one of the best books aronud you can get it on Auther House press or Amazen. It has lots of great information on how to heal yourself from this nasty illness.

[jann4sundown]

My son has this, and another son has Meniere's Disease, also very dibilitating. Young people with invisible diseases are very brave--I know many of you-- God bless and may your healing come .

Thank you for this beautiful presentation!

[oxxnniiccoolleexxo]

omg , this video made me cry & i dont even have this disease or know anyone with it, great video !

[aslanlight]

Thanks for this. Peoples attitudes can hurt us deeply and make coping with this horrendous condition harder. You've helped them to understand!

[nz804]

One lady said to me "Harden Up" and she said it looking upset and angry at me. Far out the amount of crap I have had from people who don't understand. Oh you just have depression they would say to me, you are just lacking in vitamins take a B vitamin and you will be all better they say to me, not a damn clue what they are talking about, they think everything can be fixed easy and that I can do things like run like everybody else. Human beings can be very cold!