RND Encounter

MY RND CHANNEL~ http://www.youtube.com/rndrsd


Music by www.freeplaymusic.com and me.
Places that help RND--
http://www.chop.edu/
http://www.amazingkids.org/
http://www.rsdtreatment.com/default.asp
**There a a few more but I can't find their links.
Websites--
http://www.rsdhelp.co.uk/
http://www.rsds.org/index2.html
http://arthritis.about.com/od/rsd/a/rsd.htm
http://fightingrsd.com/

Some other effects of RND on my life--
When I was away from my parents, I felt as if everyone was going to bump into me, like I had no protection.

I'd stay away from crowds.

I didn't like leaving the house--especially not for school.

I started wearing bigger shoes because my size hurt too much. I hated things touching my feet.

I stopped wearing socks for a while.

I would never run, jump, or do anything active but walk slowly.

I was afraid that people would see my "purple" skin, so I'd wear lose (because tight hurt) long clothing to hide it, even in the summer.

Sometimes I'd put on makeup just to hide my bad color.

I'd fake smiles.

I'd flinch at the sight of anything pointy.

I ate less, it hurt to eat sometimes.

I wouldn't sleep--which lead to bad scores on tests.

Sometimes I couldn't stand my glasses, they hurt. I'd take them off.

I avoided stairs.

If I cut myself--which already hurt like heck--I wouldn't put a band aid on.

I was afraid to hold my Guinea Pig--nails.

I didn't make as many videos.

I'd skip homework a lot.

I'd skip class.

I'd skip school and stay home.

I would take extremely quick showers--the water hurt....

I tried to get used to pain by rubbing textures on my skin--and have to endure it for 30 minutes.

Category:

Nonprofits & Activism

Tags:

• rsd
• rnd
• crps
• reflex sympathetic dystrophy
• reflex neurovascular dystrophy
• pt
• ot
• physical therapy
• occupational therapy
• encounter
• pinkynose499
• chocolatecamera
• illness
• disease
• hospitals
• boxing
• dentist
• health
• surgery

[brynnybrynnbrynn]

ik how u felt bc i hav rnd 2 n i hav 2 stay at the hospital at chop:(

[chocolatecamera]

@brynnybrynnbrynn I have a channel called RNDRSD for people with RND please consider looking at it. =)

[othermiZZteSsA98]

:(

[chocolatecamera]

@othermiZZteSsA98 Tessa, I have a new channel for RND.

It's called RNDRSD please subscribe for awareness <3

[Firebird5410]

Wow. I admire you so much. I admired you before this video but now.....It's great that you are spreading the awareness. I never even heard of RND before I met you.

I can't believe that so few hospitals can help! So glad you are ok now:) Oh, and to all those jerks who were cruel to you, just remember they will never be half (or even a quarter) of the person you are!

[chocolatecamera]

@Firebird5410 Thank you :D

My mom says the same thing about those kids. :) haha :) I'm cyber schooled now so all is good :D

And yes, I am doing MUCH better. But still, RND is uncureable, so I still have it.

[sugarzits]

such an sad and inspiring story, i'm glad its better now (-;

[sasawh13]

This is awesome! Did you have RND when you had your crutches?

[Pinkynose499]

@sasawh13 yes, and can u refriend me on FB? my FB deleted u :( or accept my request? plz?

[Pinkynose499]

@NCIS49er y should u be sorry? u didn't cause it

[NCIS49er]

I so sorry...But Im glad ur better :-)

[chocolatecamera]

@sugarzits it's better, but never over. :( RND is a life long disease and there is currently no cure, which is why I made this video, for awareness. Did you know that only 8 million people in the whole world have RND? (8 million out of 7.5 billion)