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Uploaded by on Jul 14, 2009

If there is ANYTHING I hate the most about dystonia is when it acts up when I would prefer it wait. For example here I am at a work meeting and tring to just "ride it out" it's very embarissing and frustrating. I never know how long it will last from 15 minutes to hours and all I can do is relax and w-a-i-t. It is like when i keep adding things to my Blackberry of fun things to do for the weekend and come Saturday after work the list is out and I know the best and only thing to do is rest. Drives me mad!

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  • I know what that feels like...its a terrible condition. Thank you for sharing. I have Generalized Dystonia myself.

  • I have the same frustration! I'm going on a 14 hour one that is just affecting my walking at the moment. It likes to do what it wants when it wants. Peace to you!

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