Doc says I'm doing well; I feel like shit. U pick!
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@IonnysBellaVita I have systemic lupus erythamatosis. It is an autoimmune disorder. I have been doing the cytoxan infusions every other week for the past four years. I know doing this SCT will be harder than I can imagine but I am ready because there will be an ending point of the chemo. Right now there is no end to what I am doing and no improvement. It has slowed the agression of the SLE but I am still detiorating just slower. I am so happy your dads harvesting went so well!!!
treappling1 1 year ago
even though you are quite weak and tired and you feel like junk, you still have that beautiful smile :) keep those spirits up! Im keeping you in my prayers!
TheRealMsBetty 1 year ago
@treappling1 this sounds like my dad protocol.. what kind Cancer do u have? My dad has Mantle Cell Lymphoma. He already did the Neupogen shots twice a day for a week & was lucky enough to have his cells collected in one day (4hrs) yesterday! now we are just waiting for them to call us to come back to the hospital :)
IonnysBellaVita 1 year ago
you are such a trooper! i was talkin to my dad about you, i tell hm how you are doing well & how its not so bad ... they gave us the good news that all his stem cells were collected in only one shot so we are happy he doesn't have to go back for that, now we are just waiting on that call to come back to the hospital for the high dose chemo (6 days of high dose chemo!) ... hes not looking forward to being secluded for a month but you give him hope... we don't know u but we love you :) God Bless
IonnysBellaVita 1 year ago
How many chemos have you had at this point. My protocol will be one cytoxan as inpatient. Then I will have a week where I do neupogen shots. Then they harvest the cells over two days. Then I have a two week rest. Then I go inpatient with five days of chemo of cytoxan and rituxan and AVG. Then the transplant and at least two weeks waiting for my counts to go up. Is this like yours?
treappling1 1 year ago