I Am Dystonia

Dystonia Awareness Video Presented on behalf of the Myspace Dystonia Support Group http://groups.myspace.com/dystonia. If You or someone You know and love have Dystonia there is a New Dystonia Educational Forum on WEGO Health that is moderated by Beka of Care4Dystonia that I highly recommend http://community.wegohealth.com/group/dystonia

Category:

Nonprofits & Activism

Tags:

• Dystonia;
• dystonic;
• dystonian;
• spasms;
• Dopamine-responsive
• dystonia;
• Writer's
• cramp;
• Tardive
• facial
• Cervical
• spasmodic
• torticollis;
• Spasmodic
• dysphonia;
• dystonia
• voice;
• Blepharospasm;
• eyes;
• dystonie;
• twisted
• torsion
• toddler;
• children;
• adults;
• distonya;
• pen;
• faces
• of;
• dystonic
• storm;
• primary;
• secondary;
• Twisted;
• coping
• with
• muscles;
• spasms
• sustained;
• botox;
• Oromandibular;
• Laryngeal;
• Cranial;
• Segmental;
• Hemi;
• Multi
• Focal;
• Paroxysma;
• Mycolonus;
• arm;
• hand;
• leg;
• shoulder;
• antidepressants;

[atomaugust]

My wife was one of the people in the video. She's not one that craves attention.

Without getting crude or vulgar, I would suggest that you get a clue, get a life and open your eyes.

[ResilientLilOne]

@atomaugust Atomaugust ... This video was done to raise awareness for Dystonia, EVERYBODY gave me written permission prior to the video being put here on UTube. As well, ALL involved sent me the pics they wished to use. Not knowing who your wife is, alls I can say is I hope she is doing well. Why would something like this make you "Harsh & Vulgar" & why would you want to say cruel things like "open your eyes" to anybody with a disability who's disability effects their eyes, that is so mean

[ResilientLilOne]

@atomaugust ... I do have a life, a very happy and fulling life, even with dystonia. Bringing awareness to Dystonia can only benifit all with Dystonia, be it less stares at the supermarket or the millions of dollars just given by the Federal Gov toward research and finding a cure. Is it the fear or maybe bitterness toward the fact that you see your wife suffer so from dystonia that you write such cruel things. Ease up, your wife needs your love and understanding not cruelness or fear

[wellnessnumberone]

Please know you are not Dystonia, you are more than that. I was diagnosed with spasmodic torticollis (no capital letters), this is not who I am, I many many more things. I am on my journey to wellness and on that journey I have found EFT, Emotional Freedom Technique. PLEASE search it on You Tube. All illness all pain is emotional stuck energy, your body CAN heal itself, PLEASE try EFT three times a day, for 21 days, what do you have to lose? Faith is a beautiful thing. Love yourself first..

[ResilientLilOne]

This video depicts the wide array of people dystonia can effect as well as the many different forms of dystonia ... I am not dystonia, dystonia is not me. Check out my video "Putting A Face On Dystonia"

[MrDylaneric]

ITT: people claiming to have dystonia for attention.

[ResilientLilOne]

ya really think people claim to have this dreaded condition just for attention .. hummm you obviously know nothing about dystonia ... my advice to you would be to get a clue !!!!

[margarethaverbraeken]

i got also distony in the worst degree. must always look out, i have not to much stress, not lightflash, drums, our unsespected touch. i missed tha tmi husband can rub mi back. but i jump to all directions. the worst is whenn the best doctor say. i can not doing any thing for you. keep strong love

[trappedhere2]

This video is beautifully done . thank you so much.

[AlexMatt1987]

Thank you, they are working on my diagnosis and I am sure you can add me to the list of those who suffer dystonia. Pray that I have the courage to go on and live with this. They have been looking for my diagnosis for 10 years now.

[BestivalFan]

Lay off the booze

[miaanna1]

I know of someone that tried botox but it didn't too do much, They only been to the neurologist once for the injections and put that whole ordeal behind them yeah what no one tells you is that there really is a cure not one that any doctor, neurologist or man could ever do I''m witness to that and have a testimony to that being diagnosis in sep.09 and cured in jan.10 proven God still work his miracles to this day. (True Story)