Haley, a child with Pompe Disease

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Uploaded by on Feb 21, 2011

I made this video when the movie "Extraordinary Measures" was coming out. It is a glimpse into the life of a child that was diagnosed with Pompe Disease as an infant. We are so thankful there is a treatment, because without the treatment, she would not have turned one, but there is no cure.

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  • thanks for the video..people really enjoy watching dif kind of videos over net rather than looking at cute kids lik this...Haley don worry u r nt alone..

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