I made this video when the movie "Extraordinary Measures" was coming out. It is a glimpse into the life of a child that was diagnosed with Pompe Disease as an infant. We are so thankful there is a treatment, because without the treatment, she would not have turned one, but there is no cure.
thanks for the video..people really enjoy watching dif kind of videos over net rather than looking at cute kids lik this...Haley don worry u r nt alone..
luvz44 11 months ago