DysautonomiaMD Re: Official: ME CFS patients have retrovirus (XMRV).

Response to luminescentfeeling
Go Researchers!!!!!!!!!!!!!!
Need to bombard the NIH with different questions...
www.clinicaltrials.gov

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[DysautonomiaMD]

I feel that I almost died in the hospital, see video on Expressive Aphasia (inability to talk even though the word comes to Broca's Area in the brain)...iv fluid was life to my body and thank God for Good Samaritan Hospital in L.A.!

Research begets research, and no one wants to see a vaccine that causes Guillian-Barre Syndrome or any other syndrome.

Each and every pill, intervention, or decision in medicine is a balance: the Balance of Risks versus Benefits.

The first rule: do no harm.

[DysautonomiaMD]

If you "YouTube" Search now, "d" "y" "s" now leads to:

"Dysautonomia", "Dysautonomiamd" and "Dysautonomia POTS"...if you keep typing, you also get familial dysautonomia. The computer must be keeping track! Our numbers are growing and/or something NEW has happened! Am I the only one who noticed? I just noticed it today. LOL to all, Dr M

[SharkBateNait]

Seems you have your own personal little angel watching over you.

[DysautonomiaMD]

Seems like I need one, especially when talking to some SharkBate, Nait! :-). Seriously, though, I wish you could spend one day with me and see how Jesus works...sometimes the wind blows flowers on our heads....sometimes we think of a person and that person calls on the phone. Coincidence? I like to think that God is Guiding My Path. With His help, I just have to keep the Path straight.

[fogggygyrl]

Sweet. :)

[DysautonomiaMD]

Thanks....hope you can see the outside world a little bit for me!

[DysautonomiaMD]

I think that Lynn has got me stuck on thinking about our children, now...they are so innocent and if we have trouble being heard, who is going to speak out for them? I know some one who sees pediatric patients with dysautonomia...perhaps I can start one person at a time, and gain more snow on our snowball! LOL, Margaret

[DysautonomiaMD]

"Contagious". My opinion? I'm not an immunologist or retrovirologist.

Thank God that someone like you is out there to make a difference, to spark interest, and to try to keep your Viewers informed. I have dysautonomia and not ME/CFS proper, This video is great! 1) education is power; & 2) it unites THE CAUSE for research, whether or not it is later proven to be true or untrue.. Science, the NIH, research, being a research volunteer...each article leads to more research!.Yes! Fondly, Dr M