My Journey with Dysautonomia, Arrhythmias, etc.
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Uploaded by lawgrad06 on Jul 18, 2011
My journey through the maze of doctors and diagnoses. But I have HOPE!
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OH YAY! Hey Jenn! Big hugs & tons of love! Xoxox
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P.S.-- Are you in Northern CO still? I'm in Boulder-ish land! If it's not too creepy sounding, I'd love to meet you sometime if so. :)
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@ lawgrad06-wow-we have a lot in common. I'll try to send u a message when I'm rested. Did u move to Toledo?
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@lawgrad06 I hear Dr. Grubb is a great doctor, so it sounds like you are in good hands and on the right track to figuring more out! Looking forward to an update video!
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@potsiemommy Thank you so much! I will be very happy to have the big move over with :-) I hope you are doing okay and that your infusions are continuing to help.
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@lawgrad06: I wept watching this video. A very difficult Journey you have walked thus far, angel. I relate to many facets of your story. I am thankful you are in skilled hands now & hope you are feeling as well as possible, sweetheart! Much love! Xoxox
SheWhoFeels 3 months ago
@SheWhoFeels Thank you so much! I can relate to so much of your story as well. I really need to make more videos! I moved to Ohio from Boulder in 2002 to attend law school, so I am not in the Colorado anymore. I hope you have a good day. I am Jenn F. from Facebook by the way.
lawgrad06 3 months ago
Thank you so much for sharing your story with us! You have been through quite a journey, but you have accomplished so much along the way! Hope your move went really well. Praying the docs can help you and figure this all out!
RecoveringPotsy 6 months ago
@RecoveringPotsy Thank you so much for your kind words! I have an update video in the works, but I have not had a chance to finish it yet. Since I made this video, Dr. Grubb and his nurse practitioner Beverly have diagnosed me with autoimmune/autonomic dysfunction. They think it's Autoimmune Autonomic Ganglionopathy, but they are getting an endocrinologist in on team. I hope you are doing okay!
lawgrad06 6 months ago
I was diagnosed with POTS in October of 2009. It's been a struggle since then..I have good days and bad days but I'm still searching for answers. I know how frustrating it can be.. I hope your move goes well though, and that you're doing good. :)
xNikki713x 7 months ago
@xNikki713x I also wanted to say that I know how hard the search for answers can be. I hope you have a good team of doctors who listens to you and takes your illness seriously.
lawgrad06 7 months ago