Rett Syndrome - The View - January 28-2011
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my daughter had this. She died from a seizure when she was 7. The most awful thing that ever happened to me
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my sister has this. hopefully my project for awesome video, a charity awareness project on YouTube, will be about my sister and rett syndrome. its on 17th December 2011, if anyone see's this I'd love you to watch it. xXx
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Love the awareness
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I am thrilled they did this my daughter was diagnosed on June 30th 2011 thank you the view
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i did feel sad for my daughter , but then i said to my self. hey she will have a great life. because of the care she would be getting, and the love . the healthy surroundings. i didnt look for attention from others. i was a medical assistant who look and care for others also. home care provider also. im single and i didnt rely on others for support. im a strong woman. i miss my daughter. she was happy and i was happy to give her everything as a regular "normal" child.
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i wish i would have been contacted of children with rett syndrome. because i had one, she died at the age of 24.5 yrs old. iknow exactly how you all feel, and are going thru. keep them happy with bright colors happy sounds. speak to them in a voice and language you and only she knows and understands. i went thru a lot with my daughter.i had a really good doctor for my daughter.
she went thru a lot but she had a rich life with me and her other care provider. she is at peace now.
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I have a 10 yr. old step granddaugher who has Retts and I wish so much she could do all the things like other children. It's so sad to see what she goes thru. I give her mom a lot of credit for all she does for her.
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i am so glad they talk about this syndrome. hope that parents never loose hope. beautiful baby and beautiful parents so much love this child have. and is all about love.
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Im glad there raising awareness about rett syndrome. My younger sister is a 14 and has rett syndrome
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I'm a father who has daughter with retts.... My faith is with the doctors not god
potaka79 9 months ago 6
My granddaughter is 7 and has Rett Syndrome. I belong to the International Rett Syndryome Foundation. We are constantly raising awareness to anyone who will listen. The reversal in mice in the lab was accomplished in the UK in early 2007. We are looking forward to the day Alison may be cured as a result of the incredible folks doing all of the research all over the world for this devistating disorder. That which does not kill us makes us stronger.
PuReN1NJA 1 year ago