Saying Goodbye to a Daughter

Hannah Grace passed away on August 1, 2010.

Prayers for Hannah Grace
This is part of a blog entry on the July 27, posting on Hannah's Caringbridge.
To see the whole entry visit: http://www.caringbridge.org/visit/hannahgraceharrison/journal
To see more about Hannah Grace and how you can help her family visit: http://www.caringbridge.org/visit/hannahgraceharrison

Hannah Grace was diagnosed with a brain tumor on May 16, 2008. She is two and a half years old. On June 2, 2008, we found out that the tumor was a very aggressive form of cancer called p​i​n​e​o​b​l​a​s​t​o​m​a​. She will have to undergo six rounds of chemo therapy and possibly radiation and stem cell transplant. On June 4, 2008, she had surgery to remove to tumor, and , praise God, they were able to remove the WHOLE thing. At this point, she has no signs of residual tumor or cancer cells in her body. We are praising God for all of the wonderful things He has done for our family in this situation, and we are looking to Him for protection and guidance through the rest of our journey.

Update as of April 2009:

Hannah Grace has completed 5 rounds of high dose chemotherapy followed by an autologous bone marrow transplant. Transplant went well with engraftment 10 days after transplant, then c​o​m​p​l​i​c​a​t​i​o​n​s began. Hannah Grace was admitted to ICU 2 days after r​e​i​n​t​r​o​d​u​c​t​i​o​n of her own stem cells due to shock from high dose chemo. She was put on the ventilator 2 days after being admitted into ICU. In total she was on the ventilator for 5 weeks and in ICU for 40 days. Hannah Grace was diagnosed with VOD which attributed to acute liver, lung, and kidney failure. At her peak she weighed 46.2 lbs in ICU, keep in mind when we came into the hospital for transplant she weighed 25 lbs. The weight gain was due to fluid retention. After being on dialysis and going through 9 days of plasma pheresis she began to get better. Off of the ventilator and her organs recovering we were sent back to the stem cell unit then began a battle with pneumonia. The doctors finally found the cause of her organ dysfunction and lung problems, Hannah Grace was diagnosed with HHV-6. It is a strain of Herpes virus that was reactivated due to her low immune system. Treatments for 5 weeks helped the HHV-6 and we were released from the hospital on April 7, 2009. We are at home with our little miracle in time to celebrate Easter.

Update October 2009:

October 14th 2009 Hannah Grace had an MRI of her brain and showed recurrence of disease. Another MRI on October 16th showed the disease had spread to her spine. We are in the fight again with radiation treatments and low dose chemo. We will not lay down, we will fight with everything we have. Your prayers are appreciated.

Music: Things Left Unsaid - Disciple

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Category:

Nonprofits & Activism

Tags:

• Hospice
• Care
• saying
• goodbye
• to
• daughter
• hannah
• grace
• harrison
• childhood
• pediatric
• cancer
• pineoblastoma
• brain
• tumor
• awarenss
• story

[2010asalee]

Beautiful video! She was such a gorgeous little girl! I am very sorry you have gone through all this pain. Your precious little girl is now in peace and her suffering has stopped.

[aquababe98]

I don't think my express my sympathy enough :(

[AnnieFireLovly]

Wow

[emilyexorcismzombie]

I am so sorry :(

[eabbie123]

this is so sad

[TheKayla3112]

this is so sad why does this thinngs happen to people who dont desevre it :L

[annechristinameijer]

I am so sorry

[maddieandkkluv2sing]

The first seconds of this video I hurt inside and cried.. Love ones come and go and we have to continue on our beautiful life's :)

[SmileBabe1998]

Beautiful Little Girl! RIP<3

[Alisahakakian]

I'm so sorry your words were just so touching