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Opsoclonus Myoclonus Syndrome, OMS Carter's Story

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Uploaded by on Mar 15, 2010

Our son Carter and his battle with OMS. Video and pictures of before during and after his diagnosis. Please share and help us raise awareness and help find a cure.....

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Uploader Comments (Mamasoapy3)

  • was your sons oms caused by neuroblastoma or an infection?

  • @gf4life Carter's OMS was triggered by his vaccines. They have never found a neuroblastoma.

  • this video made me cry. i have a daugther who has the same syndrom, she had her jabs and then five months later the same symtons as your son. she is now 12 and has server larning differcuties but is the happiest child i know, it was hard to start with but we larned to addaped and i wouldn't change her for anything. with your love and suportt your lovely little boy will do well, keep up the good work it will get easyer. all the best for the future. Natasha from london.

  • @1997natisha thanks for leaving the positive thoughts. I was recently in England, actually spent a day in London, would have been lovely to meet you! So glad to hear that your daughter is so happy! There is another OMS little boy in Swindon. I did get to meet them! Are you on Facebook? Are you a member of the yahoo group?

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  • @SportyChic12155 just fyi you may not want to name your or his school. especially without permission since the internet is a scary place & some twisted person can now easily locate him.

  • Carter goes to my little sisters school, meadowlark he is adorable!!!!!!!!!!!!!!

  • Carter is a kindergartener at Meadowlark!!! I am so happy he is in my school... But next year I am off to middle school:( CARTER IS THE CUTE AND SWEETEST lil kid((

  • oh wow i didnt know vaccines could hold that risk :( how is he doing now? is it something they can cure, u must be relieved it wasnt triggered by a neuroblastoma xx

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