My Life With Dysautonomia

Initially I made this video as an educational tool for friends and family who didn't understand what Dysautonomia was and how it has effected me. ... The video turned out to be MORE than just an educational tool for others, but also a forever reminder to me that there is so much to be thankful for even in the midst of difficulty. ...

My hope for anyone watching this video is that you would be blessed beyond measure and know that God is with you, in every circumstance, in every situation of your life and that He will see you through..... THROUGH IT ALL.

Be Blessed.

-A.

Category:

Education

Tags:

• Dysautonomia
• Hillsong
• Christian
• Inspirational
• medical
• religious

[lgvmd]

I have MS and dysautonomia. I bought a shotgun in order to cure the two conditions. I will film everything.

[cardiactec1]

@lgvmd - I can sympathize with your despair in having to live with very debilitating, frustrating conditions.. However, suicide is not the answer. Please contact me. I'll do what I can to help you. Your life is worth living - even with your struggles. Please don't harm yourself. God cares for you so very much and even though I don't know you, I care for you as well. Please contact me (cardiac_tec@hotmail.com)...or contact someone... anyone...to get some help..You're not alone in your pain.

[jrdfreckles11]

Loved the video :] How old are you? Because a lot of doctors say that you're supposed to outgrow this condition, but I haven't met very many POTSy's who have. And I want to go into cardiology, as well! :]

[cardiactec1]

@jrdfreckles11 hey there - glad you enjoyed my video. ;o) I am 29 years old, but I started in with dysautonomia symptoms around the age of 18.... Like you, I have heard my own doctors and other world renown POTS specialists says "you'll outgrow this".... that was 11 years ago and I'm still fighting this battle. ARGH! Cardiology is a blast, you'll love it. I've unfortunately been out on disability for the past year due to all of this. Miss cardiology so so much! Well wishes and prayers for you!

[turtlenamedfluffly]

my brother has dysautonomia and i showed him this and we both thank you for showing him that there are other people in the world who know the same feeling

[cardiactec1]

@turtlenamedfluffly I'm so glad you and your brother enjoyed my video. Sorry to hear your brother has dysautonomia. There's a great support crew on facebook that I'm connect to/with. If your brother would like to look me up, I'd love for him to meet all my dysautonomia friends. Angela Perry.

Take care.

[cindy030563]

@lgvmd My dear friend, I have been where u r! I have been sick most of my life & I am 48 yrs old. My dysautonomia was misdiagnosed for so long as anxiety disorder. I have been in psyc 5 times. I was suicidal. In the darkest of days and there were many I could here my Lord say He was there for me. It kept me alive. We all wana give up sometimes but we can't for when we r weak it is then that we r strong! I promise u I will pray for u & that I love u in Jesus.greeneyes28326@hotmail.c­om call

[lgvmd]

Im getting the budd dwyer treatment

[lgvmd]

Im an internal medicine physician believe me i know whats awaiting me, my love for all of you.

[gramkimberly]

@lgvmd - You have many family, friends and strangers who love you. Dysautonomia has many conditions and symptoms that are debilitating to our lives. Suicide is not the answer, please take the time to get in contact with someone to help ya. I will be praying. God has a given us all a journey, nor will he give to us more than what we can handle.

[lynnmaryvl]

@lgvmd - No, you are never alone in your pain & suffering. Many of us experience it and we find strength in God and through each other. am praying for you. <3

[FlyinHyy]

@lgvmd many people care for you, I am sure, and above all God loves you! life is precious and valuable, even a disabled life! this coming from somebody wheeling. we are here for you! tradingsorrows@gmail.com

[jrdfreckles11]

@cardiactec1 Have you seen Dr. Abdallah? He's supposed to be the tip of the top. I have a lot of friends who have seen him, and he is able to help them A LOT with all of their symptoms. I got sick when I was 13, I'm 18 now... I have NCS/VVS, however I still get the tachy part of POTS. I'm a mess. ;] lol I'm looking at going to school next year to become an EKG Technician, have you ever done that? Hope you're getting better every day :]