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In My Hands Clip- Kami and Katie

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Uploaded by on Nov 7, 2009

Clip from "In My Hands," a new documentary about Marfan syndrome by Ann Reinking, Brenda Siemer, and Emma Joan Morris. This clip introduces the viewer to Kami and Katie, twins living with Marfan syndrome.

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Nonprofits & Activism

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Top Comments

  • I love you two so very dearly. I have great pride in witnessing how strongly you attack life. Tenacious, really. I love my Dales.

  • Oh boy that's a bit wired...I mean not you guys...but my husband's name is Kamran and everybody calls him KAMI and my name is Katja and everybody calls me KATIE and guess what? We both have Marfans!!!!!!!

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All Comments (11)

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  • You girls are beautiful! Don't ever let anyone tell you otherwise....

  • @krozification Everybody tells me that i should play the piano too.

  • @AmelieSmith Again, the patronizing bullshit.

  • @AmelieSmith It's interesting you say that, because i have marfans and my mother always told me growing up i had great piano fingers, tho i'm more of a bass guitarist..

  • damn feel for the chick at the end, i try to not worry about how my body looks, but some times it just get's to me how scrawny and goofy my body is

  • both of you shouldnt feel that bad you guys dont look bad at all!!! besides that you have such nice fingers for violin!!! you know Paganini had marfan's syndrome and he was the best violinist EVER!!! not joking but I wish I had your fingers... mines are short T_T

  • Katie and Kami...the two of you are amazing. I love you both so much, and like Lisa said you two are such an inspiration to everyone. Miss you and can't wait to see you in Houston!

  • My daughter also has marfan's syndrome

  • Kami and Katie this is soo amazing, i cannot stress how much you guys are an inspiration to me...

    For my senior year project i'm going to film a documentary about marfans ... Hopefully this summer i'll be able to get footage at conference!

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