myoclonus jerking of her right leg again

this has become a daily thing since Nov.19th 2010. back in July of 2009 this started but after 4 days it quit. Now this time it has not stopped. they have her on clonodine, xanaflex, tylenol 3 with codeine and iron pills. None of the medicine is working. The only time her leg does not jerk is when she is in a deep sleep. It jerks when she walks, stands, sits, and when she is awake

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Education

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• myoclonus

[gretchencazares]

thank you also mish375, she commented earlier on your post. I cant get treatment because the neurologist say its phychological and psych say go to neurology. anyone else having trouble getting a diagnosis and getting treatment? I think requip is a dopa drug... this would make since why it works for me.

[gaylahancock]

@gretchencazares Exactly.....my daughter has been seeing a psychologist since june of last year and to this day he says he cant find a reason for conversion disorder which is what the neurologist are calling this.... the are saying that all her tests so nothing...they have done mri's,eeg's,emg's,lab work,as well as nerve conduction testings and all have come out fine. She is now on 600 mg of neurontin 3 times a day as well as 20 mg of cymbalta because she also has fibromyalgia

[parkipaula]

By the way, all my tests were always negative - hence the "Psychological Disorder" and Fibromyalgia from Cleveland Clinic. Sometimes I want to go back to all those docs and say, "See it WAS all in my head - in the BASAL GANGLIA!" But then I repent, :( and thank God that he saw fit to save a sinner such as me! Know that our Bible Study group will be praying for you!

[parkipaula]

I now have tremors, etc. now but not prior, & am only 49 - hence the 14 neuros. The Requip and Azilect only helped a little - now I am on carbadopa/levadopa for > 2 yrs,& function at home on my own. Mine is a "strange" form of Parkinson's. But I praise the Lord for the Movement Disorder Specialist - if you haven't seen one, I recommend it - you obviously :) have a "movement disorder." Thanks for adding the song-God is truly good! How do people handle diseases like this (or worse) without Him?

[parkipaula]

Your movements look SO familiar - it is what happens when my meds wear off. . When I first went to my current doc, a Movement Disorder Specialist in Pittsburgh, PA, I was off all meds- he saw only symptoms of the disease. The first thing he said to me was," Have you ever tried taking Dopamine? If it works, we know that it is under the Parkinson's umbrella." (I had 13 prior neuro docs, + others, including the psychologist :( over 25 yrs) I have now been diagnosed with Young Onset Parkinson's.

[RandomBananaChannel]

Thats so sad :(

[gretchencazares]

i am so sorry you have to go through this too. Its so painful and tiring. the only thing that works is ropinole (requip) , the doc called it rls restless leg. I been told its not since then because its involuntary. but requip has and is my life saver.I also in the last 12 months developing tremors in my arms and body. this requip dosent help, do you have other body tremors.

i hope you feel better and it just goes away for you. hang in there

gretchen

[caprand1]

how did i first watch justin bieber to end up at seizures ?!

[ryanlee604]

thank you for the song, its "Who Am I" by Casting Crowns