Proteus Syndrome

This is a movie I made for science class about Proteus Syndrome. I used Joseph Merrick and Jordan as examples of this dreadful disease. I hope this video will raise awareness and get more people involved in helping find a cure or cause for this disease.

-NOTE-
I realized I messed up with the age. I was reading one thing and saying another because I was rushing and distracted to get it done by a specific date for a school project. I know he was 27 going on 28 when he died NOT 29.

Category:

Film & Animation

Tags:

• kara
• jorgensen
• thevampirelock
• proteus
• syndrom
• proteussyndrome
• joseph
• merrick
• jordan
• disease

[RachelsJourney]

My two year has this syndrome and I thank God every day that she does not have it anywhere as bad as she could.

[thevampirelock]

@RachelsJourney I hope she is doing well =)

[Grapefruit2000]

whats the song called that plays when the pictures came ?? (sry for bad english))

[thevampirelock]

@Grapefruit2000 It's "Good Enough" by Evanescence from their CD The Open Door

[NeoQuello]

its a shame you did not mention that the verse in the beginning was made by Joseph Merrick

[AluminumF0ilHead]

I have a skin disease called vitligo where parts of my skin turn pure white. I used to get depressed because of the appearance of it, but when I looked at more horrific cases of diseases on people such as Merrick, I realized I have no right to complain about what I have. People like the elephant man suffered greatly because of their diseases.

[crowsnest3000]

My opinion is that Joseph Merrick had BOTH Neurofibromatosis and extreme Proteus.



[LydiLouiKats]

Nice job kid!

[nyancat8473]

@AluminumF0ilHead dont feel alone i actually also have vitiligo

[12ori12]

@thevampirelock The research involves many people around the world, and they find out more and more things about Proteus Syndrom every day. It's a part of their research about the human gene. If i find out more about the syndrom I will let you know. Hope it suites you :)

[thevampirelock]

@12ori12 Awesome! Seriously, I hope they find out more, and if you hear any new developments, tell me. Maybe I'll eventually get enough material to make a second video =)

[12ori12]

@thevampirelock you're very welcome. in fact, i have the second lightest case in the world, so i'm doing just fine. for your information, the national institute of health (the NIH) is doing research on the subject, and i'm very glad to be a part of it.

[thevampirelock]

@12ori12 Thank you, I hope you are doing well and are happy =)