CCSVI News 21st May 2010.wmv

Had lunch with Bill Younger CEO of MS Australia (TAS/NSW/VIC) today. He was very gracious and shared that he has been watching the CCSVI research for the past 3 years and is a supporter of MS patients gaining access to this testing and treatment.

To back his word he has made some promises of support:

1. To set up a table and tent at the MS Walks in Sydney and Melbourne to allow MSers who are familiar with CCSVI or who have had the treatment to give out information brochures on what it is, where they can get more info, testing and treatments. **Anyone available to help on the day in either Melbourne or Sydney can you please let me know on the Facebook Group discussion "MS Walk (VIC/NSW)"**

2. That any $$$ donated to our two CCSVI teams in the MS walk will go 100% into CCSVI research.

3. That for every dollar over the $750,000 target, 50cents will go towards CCSVI research.

So that's great Bill thanks... but what exactly will be done with this money hmmm? Well we discussed that we did not want it going into a slow moving, scientific research which would take 2-10 years to complete but rather a testing/treatment based research.

So if you are asking what that specifically is... well that is not yet finalised (give us a week or so) but in the meantime every dollar is a vote! So if we can show that the MS community believe in this by putting our money and efforts were our mouths are then this will speak volumes.

So get campaigning Aussies, join the teams if you can do the walk, go to the links below to donate and send the link to your friends and family. Every dollar donated to these two teams will go into the pool of funds for CCSVI research.

This is a breath of fresh air and so positive to have MS Australia representing us. Bill posted on the Facebook page today "I look forward to the day when my job becomes redundant because that's the day we find the cure. Won't that be a date to celebrate!"

Keep updated on latest info at:

http://www.facebook.com/pages/CCSVI-AUSTRALIA/263307140799?ref=ts

Updated statement from MS Australia will be coming soon (this has now been updated). Click on 'Latest News':

http://www.mssociety.org.au/default.asp

You can donate/join the Melbourne MS Walk team:

http://register.mswalk.org.au/MS-Walk-and-Fun-Run-Melbourne/CCSVI+Australia

Sydney:

http://register.mswalk.org.au/MS-Walk-and-Fun-Run-Sydney/CCSVI%20Australia%20...

Category:

People & Blogs

Tags:

• MS
• CCSVI
• Walk
• liberation
• procedure
• donation
• research
• balloon
• venoplasty
• angioplasty
• Australia
• CEO
• Bill
• Younger

[xlaonis]

Hello, I am very interested in the CCSVI treatment but the information is so controversial. Could you please tell me how do you feel since your angioplasty and if there were any visible changes on your MRI scans? Thank you very much!

[kezzcass]

@xlaonis Hi, I am doing great. Please see my very latest video (posted two days ago). I answer all these questions. Kerri

[petesullys]

A good friend of mine who has MS, will be visiting Melbourne next week and would very much like to talk to/meet with someone who has had the liberation procedure performed and is willing to chat about it. My friend is seriously contemplating having the procedure in the near future but does not have easy access to the internet and is seeking some reassurances through a face to face chat. Can you suggest someone in Melbourne that might be able to help.?

Best Regards

Peter

[kezzcass]

@petesullys Hi Peter, I have been O/S so perhaps I have missed them. PM if there is anything I can do to help. K

[apsugovs32]

oin my group on facebook... ccsvi and the liberation treatment in the USA. help me fight 

[kezzcass]

@apsugovs32 Sure thing. K

[robert80taylor]

We have been keeping patients hospitalized for a week to 10 days as a matter of safety and monitoring them for symptoms. Nobody who has the liberation therapy gets discharged earlier than that. During that time we do daily Doppler Ultrasounds, blood work and blood pressure monitoring among other testing. For more information Log on to ccsviclinic.ca OR Call on: +1 (404) 461-9560.

[robert80taylor]

This has been the safe practice standard that we have adopted and this post-procedure monitoring over 10 days is the subject of our recent study as it relates to CCSVI for MS patients.” For more information Log on to ccsviclinic.ca OR Call on: +1 (404) 461-9560.

[kezzcass]

@MACGWEEDORE Thanks Denis. Hope all goes well in Poland. Kerri