Re: ALS - An Amateur's Perspective and It's Effects

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Category:

Education

Tags:

• ALS
• Amyotrophic Lateral Sclerosis
• Lou Gehrig's Disease
• Google
• gmail
• communicate
• gay
• friend
• love
• hope

[flyguy757]

OK, there is a limit of 500 characters here and I tried to write a book.

For the moment, stay strong and positive. There is such a thing as life with ALS and I am trying to put together a book on that - it has been hard, however - limited resources and time and facts. Family members that don't have time to talk and or document but I will pursue it not just for Mark but for you now as well - you are in my prayers.

Let me know if you want to stay in touch! - Graham

[Krisztinah2o]

yes I do, I very muchly need a couch: )

[flyguy757]

Krisztinah-

Thank you so much for taking the time to make this video. I am so grateful to have a video response from someone with ALS - that is something that Mark can't do.

I have so much to say that I wanted to make a video for you but I had camera problems when I received this and I couldn't.

I have learned much about ALS - I have noted and learned about the corrections you mentioned.

I plan on making another video and I have more to say.

A very big hug to you

[Krisztinah2o]

I have a lot to say to. send me a message and I will give you my email

[slsm1234]

My older sister has been diagnosed with ALS, she is 27 years old, so I understand how orrible can be... our lifes are totally changed, but we never lost our hopes!

stay strong! ;)

(please,forgive my bad english...i hope you can understand me quite well)

[andyr001984]

LOOK UP DR. GRAIG OSTER. HE HAS BEEN LIVING WITH ALS FOR 17 YRS NOW AND IS PIONEERING THE WAY TO COMBAT THIS DISEASE AND HES DOING IT MOSTLY HOLISTICALLY. HAVE HOPE. HIS RECOVERY IS REMARKABLE. IF ANYONE NEEDS ANY GUIDENCE ON HOW TO BATTLE THIS DISEASE PLEASE RIGHT ME ON MY INBOX

[missjld]

You are such a sweet woman.Thank you so much for this video.It touched my heart,may god bless you for having the courage and strength to openly talk about this disease.My heart goes out to you.

[Uraharasensei]

You have all my force.

Keep strong!

Best wishes

[AghaZPasha]

Dear Krisztinah,

I am thankful for flaoting this movie about ALS ad your good self. I really appreciate your courage and pray to Almighty God/Allah to bless you with complete health recovery. I feel like helping you as much as possible. I admire your carer as well. Best wishes and lot of prayer for you and all suffering from ALS/MS/PLS. Love

[Alexknobsob]

It's like diving a car with the brakes on full...Your beauty has melted a would-be man turned to stone.

[Sefardisafran]

Krisztina:

Thanks for keeping us up to date! You are not alone, thank you for taking time to say "Hello", all our Love,

Sefardisafran