Infantile Spasms (Jayson)

Email me at mrs.gaddis@yahoo.com if you have any questions, and I would be happy to help with whatever info I have!
My son Jayson was diagnosed with infantile spasms on 3/1/08. He was 7 months old at the time. He began ACTH injections and Topamax on 3/13/08. He became seizure free on 3/16/08. He continued ACTH injections for 6 weeks, and remained on Topamax. Jayson has now been seizure free for over a year, and was weaned from Topamax in April 2009. I have seen many videos on here of infantile spasms, and thought Jayson's was a great example of these seizures, and thought it might help Moms looking for answers. Remember though that infantile spasms can be MUCH more subtle than Jayson's are here. If any Mom needs someone to talk to or has questions, please feel free to email me. I just want to do anything I can to help raise awareness for infantile spasms, and let other Moms know that there is hope! Jayson is almost 2, is happy, healthy and seizure free.

Category:

Nonprofits & Activism

Tags:

• Infantile Spasms
• Infant Seizures
• West Syndrome
• Epilepsy

[brionswifey]

Jayson is 4 now and he is doing great. No seizures, no meds & doing well in preschool :) He has a 2 year old little brother now.

[brionswifey]

Seriously? The same psycho posts a comment 2 weeks ago, and again today.... about a baby that is suffering. Get a LIFE idiot.

[paitoven007]

Awwwwww I'm sorry Jayson

But clearly he has great parents because he still looks very happy

[allykazzam]

@brionswifey God for bid the psycho ever procreates

[wonderall100]

@suqidan I AM ONE BITCH!

[wonderall100]

@suqidan FIND A LIFE ASSHOLE! DONT HORN IN ON SOMEBODY ELSES KIDS PROBLEM! DONT YOUR KID HAVE ENOUGH OF ITS OWN?

[wonderall100]

WHATS THIS KIDS PROBLEM? DOES HE HAVE GAS? HATE HIS MOMMIE? DO DRUGS? OR WHAT??????????????????

[gammyx5]

Please watch my video of what I believe to be west syndrome with extreme jackknife spasms.I am finding it difficult to find anything as extreme or with the same movements. Do you have information?

[MrZak1313]

God bless this child.

[bopu23]

Thank you so much for posting these videos! I am very happy to hear that Jayson is happy, healthy, and thriving in school. I would just like to thank you from the other side. I am currently a medical student rotating with pediatric neurology, and we recently diagnosed a sweet young girl with Infantile spasms. Having people like you post their videos helps us as clinicians recognize the signs to help other families with their diagnosis. God bless.

[suqidan]

I am so happy for you that Jayson is free of seizure!!!!!!!!!! God bless you.

My daughter was diagnosed the same kind of seizure five days ago and she just started ACTH last night. I see hope here, and I am sure my daughter Annabelle will get well soon!!!! God bless us! Thanks for posting this!

[suqidan]

@wonderall100 You are such a pathetic person, go find a doctor!