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Crohn's Disease- Site for RENT video contest

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Uploaded by on Nov 5, 2007

I was diagnosed with Crohn's disease when I was 8 years old. Crohn's disease is inflammation in the gut, however I have it in my bones, joints and trachea as well. Since being diagnosed, I have been in the hospital for weeks at a time, on steriods and on a liquid diet for 6 months. I saw RENT in 2006, when I was recovering from a Crohn's flare and it changed how I looked at life and how I look at my disease. If this movie were on the Site For Rent website, it would help me with my mission of spreading awareness about Crohn's. I thank Jonathan Larson every day for helping me live my life to it's fullest, even when I am sick. Please vote for my video(starting December 5) at:http://www.siteforrent.com/onlineauditionAlso, please give comments, I would love some input!!!!

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Uploader Comments (laureljaclyn)

  • I was diagnosed 2.25 years ago exactly from yesterday, on April 21st 2006. It was my birthday. My Crohn's is in my Illeum. However, my medicine is going around it so I may need surgery. =(

    Last year, I had to go on a liquid diet. I couldn't eat food for a month and a half. =(

    Have you had CT Scans or Colonoscopies? Those drinks are horrible!

  • Hi astroman129!

    I am sorry to hear about your crohn's. I know exactly what you are talking about with the liquid diets. I was on Modulen for 9 months. What formula did you use? I tested a lot of different ones, and I think modulen tasted the best. I also found I liked adding some Nesquick chocolate flavoring to it...it helped a little.

    Regarding procedures, I have had several colonoscopies and 4-5 CTs as well as 2 surgeries...not fun. How about you?

    Best of luck with your surgery!

  • Wow! Your video gave me goosebumps! Awesome!

  • thanks! :)

  • Great video, i was diagnosed with this afawl disease 8 years ago

    lf have had 3 surgeries, i no what you are going through. Good luck with everyone who is going through this disease.

  • I wish you the best of luck with your health. It is great to hear from people that are finding something in common with this movie. I hope it gives you something to relate in the good and bad times to come.

    Laurel

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  • I also suffer from crohns see my video at wayneo169 on youtube I just had major surgery and are about to have a second

  • I also have crohns - I had severe issues - pumped full of drugs - had ostomy bag and intestines removed... I started taking an aloe and sea vegetable drink (not bad tasking - honest) and it put me into remission - I went from 50+ pills a day (steroids, antidepressants, anti-inflamatories, antihistamines, injected immune suppressing drugs, toxic stuff...) to just 4 ounces of this stuff every morning... I have no pain and I feel great... I wish I could share this with more people - how can I?

  • omg...... What Camp Oasis do you go to? If you go to the one in New York, you might know me!!!! I have had Crohn's since 2005, and I was on prednisone when I first got Crohns. Right now I am on Methrotrexate pills and remicade. I feel really inspired by your story, and I will favorite it and pass it on. <3, Lauren

  • What a wonderful video. I have crohns and really suffer with the prednisone. I am on Imuran and Remicade and tapering Prednisone in three weeks.

    It is a disease that requires a lot of meds, patience and time.

    Thank you so much for a great video on IBD.

  • you poor thing getting the monster so young my heart goses our to you i got this when i was 17 and about to do 12yr at school not fun thats for sure i enjoyed your video we need to raise awareness about this monster lol good luck

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