Spinal Muscular Atrophy - Mickey Button Change Out
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Uploader Comments (Shira2)
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All Comments (22)
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tgfhufrygbnn
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I have a 13 year old girl with sma type 2. I remember when she got her button. We thought it was so horrible. 11 years after she got it , she loves it. She still calls her feedings her Tummy Juice.When I need to give her a med and I just want her to take it by mouth she says I am not drinking that! That is what the button is for! Got to love kids. If you run out of lube, olive oil works great. lol
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Nice job.
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Thank you for the video
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aww she is so cute!!!:) poor girl . she has to deal with this disease. but she's brave and god bless!!!:)
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This video was very useful.
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I just want you to know this is a great video. I have a little one with a number of neurological problems. She currently has a G-Tube and it is getting switched to a Mic-Key in a couple of weeks. Seeing this video eased my mind about changing it at home. Thank you.
aemasters 2 years ago
Thank you and you're welcome. Remember the trick is to have everything prepared and a spare on hand. Some holes close over quicker than others so have everything ready to go, pull the old one out and immediately replace it with the new one. You have to use a little more pressure than you think to get it in! If you ever need more help feel free to contact me and I can show you what to do using video conferencing.
Shira2 2 years ago
SHIRA2
What is this for?
Is it part of a feeding tube?
larbacmc 2 years ago
yes, the tube connects to the Mickey Button.
Shira2 2 years ago
My 4 year old daughter pulled her mickey button out after having it for only 2 weeks this week. I watched this video while she was in the hospital and was able to help her immediately and the docs were amazed. Thank you so much!
VejrostaFamily 3 years ago
I'm glad I could help! It's my aim to really help make life easier for all of us in any way I can. Give your girl a hug from us! Brad
Shira2 3 years ago