Help CURE Pulmonary Hypertension
Uploader Comments (Brencin)
Top Comments
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This is bullshit, its all the FDA's and Pharmecutical companies faults, trying to treat not cure.
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DOn't give up hope.... I nearly died from PH with 20 years old. I never thought i'd turn 21 but I got a double lungs and heart transplant last January. Today I am absolutely fine. I can walk, I can live. It is a new life...
All Comments (17)
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Thanks it was my ex girlfriend using my account when we were together. Not everything is as black and White with transplants and relationships. Transplants put alot of pressure on relationships. It's hard to deal with and hard to live with someone.
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@harpersteven you are a very strong women...
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my mom died from pulmonary hypertension wen i was 2....they didint know what it was untill it was to late .....i am praying for everybody who has ph ....yall are very strong.
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I know. I have flolan for PPH class 1. It's good to me. I don't need to get a double lungs and or heart transplant that too much pain for me. Ugh. But I happy for you. :) Good luck, keep up going!
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THanks a lot... Just wanted to say that i got a double lungs and heart transplant in January. It was hard but boday i've got a new life...I'm absolutely fine and experienced my 21 years old in June! There is hope... Don't give up! WIll post a video soon to talk about my experience
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I have PPH. My prayers are with you! God bless you.
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I know about PH isn't curable. Sadly. But good news there is treatment able for me and PPH people who want to live long.
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I was diagnosed almost two years ago with idiopatic ph. I am currently on Flolan, letairis, Revatio and coumadin, I was stage four when diagnosed but have had a very good rersponse to treatment and am currently stage two. They doctor is switcing me to Remoudalin in three weeks. Hang in there , treatment is available. Good luck to bothof you.
I have pulmonary hypertension I am 15 but thanks god Iam ok
mjvg1 3 years ago
Our prayers are with you.
Brencin 3 years ago
I am 20 from France ... got PAH too .. I am desperately waiting for a double lungs and heart transplant...
Littleangelgrr 3 years ago
Good luck with the transplant, I know it will be difficult but at least it gives you hope....my prayers are with you!
Brencin 3 years ago
my mom was just diagnosed with PH, its secondary to her lung disease Pulmonary Alveolar Proteinosis or (PAP) no cure for this either. She is 46 :(
RabidNurse 3 years ago
I am so sorry to hear about your mother also, and so young, there are so many new meds out there now, but i know first hand how difficult it is to hear about your mother, my prayers are with you.
Brencin 3 years ago