Challenging the Ban on Compensating Bone Marrow Donors - Press Conference 10/28/09

FOR MORE ON THIS CASE, VISIT http://www.ij.org/bonemarrow

Press conference at the National Press Club.

CHIP MELLOR: 00:15 - 01:05
JEFF ROWES: 01:05 - 03:03 04:03 - 04:37 [Akiim intro] 06:40 - 07:06 [Shaka intro] 08:53 - 09:43 [Wagner inro] 14:18 - 15:12 [wrap up]
DOREEN FLYNN: 03:04 - 03:57
AKIIM DESHAY: 04:37 - 06:37
DR. WAGNER: 09:44 - 14:16

Media Contact: John E. Kramer (703) 682-9320

Every year, 1,000 Americans die because they cannot find a matching bone marrow donor. Minorities are hit especially hard. Common sense suggests that offering modest incentives to attract more bone marrow donors would be worth pursuing, but federal law makes that a felony punishable by up to five years in prison.

That is why on October 28, 2009, adults with deadly blood diseases, the parents of sick children, a California nonprofit and a world-renowned medical doctor who specializes in bone marrow research joined with the Institute for Justice to launch a legal fight against the U.S. Attorney General to put an end to a ban on offering compensation for bone marrow donors.

The National Organ Transplant Act (NOTA) of 1984 treats compensation for marrow donors as though it were black-market organ sales. Under NOTA, giving a college student a scholarship or a new homeowner a mortgage payment for donating marrow would land everyone—doctors, nurses, donors and patients—in federal prison for up to five years.

NOTAs criminal ban violates equal protection because it arbitrarily treats renewable bone marrow like nonrenewable solid organs instead of like other renewable or inexhaustible cells—such as blood—for which compensated donation is legal. That makes no sense because bone marrow, unlike organs such as kidneys, replenishes itself in just a few weeks after it is donated, leaving the donor whole once again. The ban also violates substantive due process because it irrationally interferes with the right to participate in safe, accepted, lifesaving, and otherwise legal medical treatment.




The only thing the bone marrow provision of NOTA appears to accomplish is unnecessary deaths. A victory in this case will not only give hope to thousands facing deadly diseases, but also reaffirm bedrock principles about constitutional protection for individual liberty. This is the first time NOTA has ever been the subject of a constitutional challenge.

Category:

Nonprofits & Activism

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[oopik]

I live in Canada, and donated bone marrow once, and peripheral stem cells four times for my cousin. I tried to sign up for the Bone Marrow registry, which is, as far as I know, an Inernational database of bone marrow donors. I was told by the Canadian agency that because I had donated once, I couldn't register, and that I could never donate again. I don't want to be compensated...I just want to be able to help.

[jimbobubbadj]

I couldn't agree more. Great video.