Life before and now with RSD

Who I was before the RSD and now with this horrible disease

Category:

Education

Tags:

• RSD

[moonbearwolf]

Your An Amazing Woman, I Do Know Pain Others Cannot See, & I Know What It's Like To Want To Hide Away...Thank you for sharing...just me (O:

(I've E.P.P. Porphyria, Diagnosed at 4 yrs of age, now 44 yrs old, life doesn't change, no matter how many good days, how strong we are on the outside...we hurt so much inside. Those who understand the pains, are those who suffer the same or similar.)

[cordovaAK49]

@moonbearwolf Hi: I am Samantha's Mom, I wanted to thank you for your very kind words to Sam, Your an amazing woman, you must be a gentleman to have such nice words and to see what Sam has gone through. Watching her grow up and having the opportunity to homeschool and see her achieve so much and thebn it all taken away after just foot surgery doesn't seem fair. Thank you for sharing what your are going through, sorry to hear of your pain too. Again thank you.

Lorri

[donnyfbaker]

you and all the other rsd victims are more than stronger as the strongest person on earth may god be with you :)

[quaxk]

it might be an horrible disease, but this song is even more terror inducing

[ShotgunBarbie1]

I too have suffered with RSD/CRPS1 for 7 yrs. Dr's had me on insane amounts of opiots and benzos along with countless spinal injections. My life crumbled. I was hopeless. In Nov., I found Dr Peter Pretzkop in CA at BFC Pain Track. When I arrived my right leg was blue, cold, useless and oh so painful. It is now pink, warm, works just like the other one and I am drug free! I found hope and want to share it! What a miracle it is to have my leg back and my life back. If you suffer, look him up.

[torylinnangel]

i have rsd. i hate sitting down and trying to sleep because my leg jerks alot, and when i walk, i hyper extend my knee backwards so i don't fall. it almost makes me cry because i can't control it and my leg always hurts and feels tired.

[lovedandlucy]

This video really touched me. I have the same condition and have watched my life change drastically since it began when I was 13. My entire personality has changed. I feel like I'm not the person who I could have been, but I'm working on it. The pain can make me cynical, depressed, and even jealous of other people. I'm very thankful for the internet, where I connect to other people who suffer from debilitating diseases. I spend most of my days in bed, so this is my lifeline. GOOD LUCK.

[ashleywrote]

But thankyou for sharing it makes me want to keep fighting harder and stronger!! I will keep you in my prayers!

[ashleywrote]

This movie was very touching, it also makes me scared. I was diagnosed with RSD/CRPS 5 years ago and amazingly the symptoms went away for two years! I was really blessed cause I was having a huge problem with pain! then it started back up this last year luckly Im still being as active as I can be staying in show choir! I also have a sister that has the same thing who has club foot and is in Stage 4 it is really hard to see get through the day the way she does... I just hope that I dont get there

[sterremaan80]

Dear Samantha, My English is not so good. But i hope you can understand me. 1997 i was diagnosed whit RSD and we called it in the Netherland CRPS type 1. It was comming after a stupid accidend on my work. Now we are 14 years, futher and i'm laying the whole day on bed. I know what you have been trough. And, it's horrible. The pain is some times killing you. but i see on the pictures a beatiful woman who see the light in here live also as i do. I wish you al the best i can. Whit love Alma&Storm

[tlothetrice]

i was diagnosed with crps about 2 years ago now. so i can understand her situation. anyone with this disease will understand that the pain is unbearable at times. try to strengthen your mind to cope with pain, rather than lashing out and punching everything in sight (like myself). keep pushing on hun!! i hate seeing this diagnosed on other people :((((((((((

[kyd1970kyd]

I was just diagnosed with crps just 3 months ago. Although I have only experienced the pain for a few months, I am sure all of us with crps would say ten minutes is too long. God bless you for making this video. Keep the faith and know God is there for all of us. When I am in the worst pain I ask God to put his arms around me and hold me. Merry Christmas to you and your family!!!!