BBC Your News - Living with Narcolepsy and Cataplexy
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Does anyone agree that there may be a link between Narcolepsy and flu vaccinations?
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Love the video Dee! Thanks for sharing your story for everyone.
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Your videos were very enlightening. Thank you for the insight.
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Swine flu vaccine, Pandemrix, gave me and round 100 others in Sweden Narcolepsy and cataplexy..
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I have it too, but I have only had a few sudden sleep attacks. It's really unfortunate that people in the UK don't have access to medications that we do in the US until years later. Xyrem and Nuvigil have changed my life. It took about 16 years for me to get my diagnosis after seeing countless neurologists, but that's typical. It's not at all like in the movies as we all know!
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I have narcolepsy thankfully without the cataplexy.
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My mom has it, too and thank god none of her 3 children(we're all in our 30's) have it.
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Thank you very much for sharing this. I have had 5 cataplexy attacks and have researched it as much as possible on the net. The stats i found were 1 in 2,000 have narcolepsy. Great need to educate people so they can recognize it . Your videos help. Thanks
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first video ive seen of the real thing i have it and it sucks ass thanx for educating people
ManoftheCrows 2 years ago 8
Thank you for posting. I have narcolepsy and cataplexy and watching this and knowing that I'm not alone makes me feel stronger.
ZyXwVuTs99 1 year ago 5