What is Postural Orthostatic Tachycardia Syndrome? Part Two

Thank you!

I Live with Pots everyday... I was diagnosed a little over a year ago but have been ill for over 5 years. I use to think it was all in my head, because the doctors i went to made me feel that way. When I recieved my diagnosis i cried. not because i was sad to hear it but because i was finally told i was not crazy. I had a name to why i was feeling this pain and illness. There are days when I can't get out of bed. But I try. Thank you for sharing your story. Ruth B.

BTW....looking for a doctor in Oregon, preferably, Albany or Salem area.
If anyone has any ideas???

My husband just had a regular work physical and asked the doc if he had any ideas for POTS docs in our area as we just moved. The doc totally poo-pooed the disease and when hubby was telling me, I was livid. "Did you tell him this, and this, etc." Hubby just said it didn't matter cuz we never have to see that doc again. My point is it is so important to get docs and others educated so POTS patients don't suffer the misunderstanding along with the disease! Thanks for the video!

Hi I live in NCM and read your article in The Press. I would love to talk to you. I have had it since 2007 and it has really affected my life. I see dr nanavati in Court House. I would lo0ve to help spread the word.

I have to say, this is one of the best video's I have seen to describe everything. Great Job

Well done Kylie, it explains it well..I love the bit about Miss Ignorance asking can't you just take medicine. (You forgot the other classics: do you eat well? Maybe try taking vitamins?

Thank you so so much for your videos... you'll never know how much they comfort and inspire me! When I get really down, I watch your Miss Ignorance video and it helps my mood... I've watched it at least 20 times this week after being diagnosed!
Please keep up the good work, you are doing an awesome thing, I can't wait for some more updates!

I completely agree!
It's so hard to talk to my friends about how I feel - they don't understand how tiring daily activities is. Having someone else who's going through it makes me feel so much better.
I think what makes it so tough (as I'm sure most of you know) is thinking how active you used to be. I was running a few miles on a daily basis - now, if I can go to class without getting tired I'm ecstatic.