What is Postural Orthostatic Tachycardia Syndrome? Part Two

Postural Orthostatic Tachycardia Syndrome is a form of Dysautonomia. It is a life altering condition that results in a variety of symptoms; the most common being low blood pressure and a high heart rate.

Thanks so much for watching!!!! Please help me spread awareness by showing people my videos and just talking about it! We can do this.

XOXO,Kyli

Credit for some of the information & facts goes to Potsplace.com (Grubb, 2000)

Songs are: John Mayer-"Say" & Gnarls Barkley-"Crazy"

Category:

People & Blogs

Tags:

• postural
• orthostatic
• tachycardia
• syndrome
• POTS
• Dysautonomia
• fainting
• intolerance
• chronic
• illness
• life

[dpulice07]

i hope you don't mind i am going to post your videos on my website! i love them they are so true to how i feel! you have done an amazing job!!! =)

[chronicallykyli]

Thank you!!!!!

[chocolatemusica]

u did amazing on this!!! i have had POTS for 2 and 1/2 yrs and in a wheel chair..im 17 so i gotta deal but everyone keep hope

[chronicallykyli]

::hugs:: Thank you so much. Stay strong, things will get better.

[allkirken]

This video is absolutely amazing. It really displays how people react. I too have POTS and this just makes me feel like im not alone in all of this.

[rapreborn]

I totally love you! You are so awesome! Thank you for showing us your strength and inner beauty and love for others. May you be blessed!

[SuperMissblueeyes]

Thanks for sharing your story & well done for managing to do these videos, it must have been really difficult for you. I have chronic fatigue & although our problems are mainly very different, the one thing we seem to have in common is disabling whole body tiredness. Did you say it lasts for about 5 yrs? I hope you get better sooner. If that's your son I saw in one of the videos, he must be so proud of his Mummy & your man must be so proud of you too. You're doing so well, keep up the good work.

[FireFlames012]

My POTS came on very suddenly not too long ago. I spent 12 days in hospital until they diagnosed me with it. My heart rate goes from 66 to 164 by simply standing. I find myself passing out 2-5 times a day. I have managed to hold my job despite the fact that I am tired constantly and am drinking about 3L of water a day. It is truly exhausting. Thank you for posting.

[Steuben1978]

Seems i got this Problem too! Last Year i was treated for 3 month for lyme disease Stage III! A lot of my symptoms are gone! But theres one Problem! I still feel tired very often! Sometimes dizzy and heavy legs! And my Heart gets from 50-60 to 90-100 when standing up and the goes back down to a normal! rate! Everytime i make a move even in Bed i can feel my heart rate going up! Is that POTS???

[TheKorrey]

Hi, I am 34 years old and very sick. I have been sick for a long time. I am single Mom to 12 year old girl. I am disabled. Life has been so hard lately and had pretty much given up except for Daughter. Everything in me has started giving out, liver, heart, kidneys. I am very underweight and malnourished. I have lost everyone and everything I cared about. Your video has changed my life litterally, I am not alone!! THANK YOU for this, I now know what is wrong with me! I AM NOT ALONE! FINALLY!

[afqdrama]

I am 30 years old and have been struggling for 3 years with no diagnosis in and out of hospitals. I have not been working and am sometimes unable to walk or speak after I wake up from what I call an "episode". I have just been diagnosed with POTS about a week ago. It feels weird to finally have a diagnosis and don't really know much about it. Thank you o much for posting this channel and for being so open with how POTS has effected you. <3 <3 <3

[StephanieH0103]

I was just diagnosed with POTS... I thought I was going crazy and maybe it was all in my mind. I am glad to have an answer. But now I start the journey to see what medications can make my life semi-normal. I am 37 and have not worked in a year.. I hope to get some relief soon. Thanks for all your info! They def have helped me and my understanding of this illness