Spinal Muscular Atrophy - Bath with trach in my neU tube

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Uploaded by on Jun 28, 2009

Alesia was diagnosed with spinal muscular atrophy type 1. SMA affects all voluntary muscles and this include arm, legs, trunk, muscles, breathing and swallowing etc. Some of the simplest things in life are challenging and almost an adventure (because of the trach and very weak muscle) .... Yet....she seems to enjoy some of this "adventures".

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  • @choolwe100 Sadly, you cannot. SMA is a genetic disorder that, without getting too technical, cannot be treated by steroids because anabolic steroids (the kind you're probably referring to) enlarge the muscle mass of the body and prevent it from breaking down. That won't work in this case because SMA is has to do the lack of neuron (brain) connections between the spine and the brainstem; essentially, they're severed. Unless you can find a way to glue them back together, steroids are useless

  • @TheStarJuggler that's a girl

  • What a brave little man.

  • What a brave little man.

  • cant you like treat people with SMA by giving them steriods cause it will make their muscle bigger enlargeing it

  • she's such an inspiration and seems like a GREAT kid :) You're in my prayers.

  • She looks great!! she is happy and so fun to watch. Thank you for the nice comments! Give your girl a hug from us!!

  • Thank you Brad! We gave HER extra hugs today! we are happy to see that our heroes are our fans! kisses and hugs to Shira!

  • Aww. Keep it up and stay strong. :)

  • WTG sweetie!

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