please raise awareness for neroblastoma! layla-grace

layla grace marsh 2 year old who passed away from stage IV high risk neroblastoma. to learn more go to www.laylagrace.org & to follow her mom on twitter as she raises awareness & research for neroblastoma go to www.twitter.com/laylagrace. the song i chose was played at her celebration of life & at the end is the end of the song temperary home w/a poem. if it goes to fast for ya just pause it so you can read it :-). i hope you enjoy the vid & help raise awareness for this HORRIFIC disease! thnx

Layla has always been a healthy child, 80th percentile for weight, a great eater, a great sleeper. She is sweet as pie and a little cuddle monkey (she wont let you put her down!). She has a very advanced vocab for her age which really helps us manage her pain and give her what she needs as her care continues.

Layla had a great 15 month checkup. At around 16 months her sleep habits and appetite started to change and she started to become more irritable. Mid March appetite began to decrease. At the time we thought we were dealing with a picky eater. Beginning of May Layla woke up one morning with a swollen eye. We took her to the doctor and she was treated for an ear infection and the doctor said the swelling was just a result of the ear infection. At the same time we noted that her belly was hard and somewhat distended. She had not had a bowel movement for a few days and we were concerned that she was becoming constipated.

The next day we took her to the pediatrician who put her on Mirilax over the weekend and told us to call back Monday. By Monday morning she was not eating at all, still no dirty diaper, her activity level had decreased and was rubbing her belly and lower back and saying owie.

Our pediatrician referred us to a GI specialist to see why she was so constipated and wasnt eating. On Thursday May 7th as we sat in GI specialists office expecting to be told that Layla would need some kind of treatment for constipation we instead hear words like Cancer and Leukemia. A series of X-rays and tests were ordered and we were sent home to wait on the results.

That evening about five minutes after we walked in the door we got an urgent call from the GI specialist telling us that the test results were in, that things were not good and that we were to bring Layla into the ER immediately and that a team of doctors would be waiting for us.

Layla has a massive cancerous tumor (Stage 4 Neuroblastoma) in her abdomen. It extends from above her left kidney, around her side, over her belly and wraps around her aorta. In addition, the cancer is in her bone marrow.

Our sweet Layla went from normal happy and healthy to lethargic, in pain, and skin and bones in a matter of a week and a half.

Category:

Nonprofits & Activism

Tags:

• neroblastoma
• cancer
• laylagrace

[lovelaylagrace]

Damn right we need a cure for this horrible disease..I hate cancer so much. It can rob the most innocent of so much but not of everything and this baby always knew how to smile and laugh.

I miss her more than words could ever be expressed here..I love you, Layla Grace.

"you raise me up to more than I can be"

[TheMegatwilightsaga]

OMG I AM CRYING

[nahbu0407]

my son was just diagnosed with stage 3 nerblastoma it has been the most hard and sad days of my life he is only 3 and this video gave me hope that even tho he may leave us that there is something greater out there for him and i will see him again thank you for fighting the big fight!!!!! RIP sweet baby angel layla!!!!!!!!!